In the Forums

Register

Today's Posts

Search

Get the Weekly
Inkling
newsletter





Previous Issues

Get Social

Splitcoaststampers on InstagramLike Splitcoaststampers on FacebookFollow Splitcoaststampers on TwitterPit Splitcoaststampers on Pinterest

Sponsored Ads


 
Splitcoaststampers.com - the world's #1 papercrafting community
You're currently viewing Splitcoaststampers as a GUEST. We pride ourselves on being great hosts, but guests have limited access to some of our incredible artwork, our lively forums and other super cool features of the site! You can join our incredible papercrafting community at NO COST. So what are you waiting for?

Join the party at Splitcoaststampers today!

Reply
Thread Tools Search this Thread Display Modes
Unread 01-16-2007, 09:00 AM   #1
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default Prayer Request for my lil' Girl & her Drs.

We are asking for Immediate Prayer for Tennisyn and her Drs.

Tennisyn stops breathing and turns blue and we do not have a clue why. This has been happening since she was 6 months.

She had another one on Wednesday. This is the 6th time. When I found her this time, she was blue with her tongue hanging out and she was stiff. There is NO REASON for this at all. She fell on her bed on the pillows.

I started CPR and rushed into my room, called 911. 911 was here for over 45 minutes monitoring her and trying to calm me down. Chris was over in Hawaii for the week.

Yes, we are going to the moon, sun, whatever for answers. In the past, 8 Drs. did not have an answer. We have to have answers before she starts school in two years.

I completely panic now if I do not hear or see her. If she starts to cry, I panic. Yesterday, she went upstairs and I didn't hear her, I was a basketcase until I heard her and saw her. Chris said she is okay, you are shaking. At this time until answers are given, I want noise from her in my house.

We have an appt tomorrow for her with her Dr. Please pray for knowledge and healing.

Thank you~~Blessings~
__________________
SB Mom & Then Some!!
Trust in Our God!
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 09:51 AM   #2
Watercolor Wizard
 
scrappincat's Avatar
 
Join Date: Jun 2006
Location: Dorkland
Posts: 8,421
Default

Immediate prayers is what you're getting..................

Hugs to you, as that's the only thing I can offer.............hang in there!
__________________
~Cathi~
scrappincat is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 09:53 AM   #3
Watercolor Wizard
 
hollylogic's Avatar
 
Join Date: Oct 2005
Location: Texas
Posts: 8,779
Default

hugs and prayers for you and your little girl. . .
__________________
Holly
InkPaperStamps: When you're hot. . . .
hollylogic is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 10:22 AM   #4
Mad Swapper
 
FromKorea's Avatar
 
Join Date: Feb 2005
Location: North Carolina
Posts: 1,725
Send a message via Yahoo to FromKorea
Default

Sending you and your daughter (((((((HUGS))))))) and prayers.
__________________
Cassi R
Mom to Tommy born June 5, 2009
ΦΜ
“No one can make you feel inferior without your consent.” Eleanor Roosevelt

My Gallery
FromKorea is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 11:23 AM   #5
Stazon Splitcoast
 
Novell's Avatar
 
Join Date: Aug 2004
Location: Washington
Posts: 10,780
Default

Prayers for you all. What a scary, scary thing to be going through. Maybe hook a bell to the back of her pants or something so you can hear her moving around when she is not in your sight, just for some added reassurance.
__________________
My Blog: Mastering the Art of Procurement
Novell is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 11:31 AM   #6
Glitter Guru
 
gmcbunny's Avatar
 
Join Date: Feb 2005
Location: Portland, Oregon
Posts: 5,375
Default

Oh Kristy, I hope the Drs. figure out what is going on. You and your family are in my thoughts and prayers.

{{{{Big Hugs}}}}
__________________
Kate

“So many of our dreams at first seem impossible, then they seem improbable, and then, when we summon the will, they soon become inevitable.”
gmcbunny is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 12:02 PM   #7
RAGIN' CAJUN WANNABE
 
Granny Hawkins's Avatar
 
Join Date: Jan 2005
Location: OREGON BOUND!!!!
Posts: 85,380
Default

Thoughts and prayers coming your way. I can only imagine how your heart must stop when there is silence in your house.
__________________
"Lord,if you cain't forgive me all my sins,just don't remember them too good,no." "Thank you,Amen"
Granny Hawkins is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 02:31 PM   #8
Gallery Gazer
 
Join Date: Jul 2005
Posts: 6,087
Default

I will keep you and your daughter in my thoughts and prayers!
__________________
Never underestimate the value of the little moment.
GoodImpressions is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 03:15 PM   #9
Watercolor Wizard
 
kikikaren's Avatar
 
Join Date: Apr 2006
Location: Somewhere, out there...
Posts: 8,193
Default

Sending hugs and prayers your way!

I can't help but think I've heard another mother talk about a similar situation (with her son I think) on SCS, maybe in the past 6mo or a year. I don't remember where she posted it (wish I did) and don't know if you can find it with a search as I think the search only searches the titles (she may have posted it in Need a Lift and started it out with a request for prayers). Have you tried posting something in Family Matters that describes the symptoms in the headline to see if someone else may have experienced this? Maybe the mom would see it and respond? I can't remember off hand if they figured out what was going on with her son, but at least she'd be someone you could talk to that's also going through this.

I hope that helps and that the docs figure out what's going on and fix it soon!
kikikaren is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 03:38 PM   #10
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

You girls are so awesome. Thank you so much for your thoughts and prayers.

Tenny seems to be okay right now--but I am a Mama Hawk right now. This is how it goes though. She has this problem and then she is fine . In fact, the last time she had one was in the summertime. Last week, I thought to myself--wow, we haven't had situation since summer. I was happy thinking she had out grown them...then Bamm!! She doesn't remember anything either. I asked her what happened, she said "Nothing Mama, why you ask that."

We did go outside today and played in the snow for about 45 minutes. We built a Snow"Girl". The girls had fun.

We are hoping that the weather is better to get to the Drs. tomorrow. We have snow and suppose to be freezing rain tonight.
__________________
SB Mom & Then Some!!
Trust in Our God!
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 03:59 PM   #11
Splitcoast Challenge Hostess
 
resqbarbie's Avatar
 
Join Date: Sep 2006
Location: south of SOHO
Posts: 21,524
Default

My heart goes out to you...I am a Paramedic and feel my heart break every time I see a sick child. I don't know what I would do if it was MY child. Stay strong, answers will come...you are in my prayers...
{{{{{{{HUGS}}}}}}}}}}}}
__________________
I missed this place!

Denise

resqbarbie is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 04:25 PM   #12
Watercolor Wizard
 
hollylogic's Avatar
 
Join Date: Oct 2005
Location: Texas
Posts: 8,779
Default

I think this may be the thread kikikaren is referring to:

http:////www.splitcoaststampers.com/...d.php?t=189149

Hope you all get some answers, fast!
__________________
Holly
InkPaperStamps: When you're hot. . . .
hollylogic is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 04:31 PM   #13
Die Cut Diva
 
mustardseed's Avatar
 
Join Date: Nov 2005
Location: I now live in Flin Flon, MB Waaaaaaaaaaaaay up north.
Posts: 3,240
Send a message via MSN to mustardseed Send a message via Yahoo to mustardseed Send a message via Skype™ to mustardseed
Default

WOW!! This is so scary. I'm praying.
mustardseed is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-16-2007, 05:13 PM   #14
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

Quote:
Originally Posted by hollylogic
I think this may be the thread kikikaren is referring to:

//www.splitcoaststampers.com/forums/showthread.php?t=189149

Hope you all get some answers, fast!
Thank you for this link...I remember reading about this when it came out. I completely understand where she is coming from. Having him sleep with her--I have had Tenny sleeping with us.
This however is not allergy related. They have ruled that out some tests where done earlier.
Someone has mentioned Epilepsy. All we know right now, is we are very anxious for the Drs appt tomorrow, we hope as the snow and ice is here.
__________________
SB Mom & Then Some!!
Trust in Our God!
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-17-2007, 02:55 PM   #15
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

We got to the Drs today--Slip, Sliding Away.

She has pretty much ruled out the "Holding of the Breathe". Did you know that an abnormal reflex allows 5% of normal children to hold their breath long enough to pass out. The children do not do this deliberately. The reason that she has pretty much ruled that out is because when this happens Tenny gasps for the air, then her eyes roll back in her head and she is gone.

We are scheduling an EEG for her and going to a Neurology Specialist.

Please continue to pray for knowledge and healing. Thank you so much...
__________________
SB Mom & Then Some!!
Trust in Our God!

Last edited by tenmonkey; 01-17-2007 at 04:55 PM..
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-17-2007, 02:55 PM   #16
Hardware Hotshot
 
kimmery's Avatar
 
Join Date: Apr 2004
Location: living in the sistahood!
Posts: 4,469
Default

Oh Kristy---Just praying for you and Tenny! May the Lord reach down and bless her and the drs. so they can pinpoint what is causing these episodes. And most of all come up with a solution.
Hugs, Kim
kimmery is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-17-2007, 04:32 PM   #17
Pearl-ExPert
 
California gal's Avatar
 
Join Date: Jan 2006
Location: San Diego
Posts: 2,754
Default

Kristy,

I'm adding my prayers to the others. May God guide your doctors to discover the cause of your daughter's health problem and to know how to help her best.

Please keep us posted.
{{ HUGS }}
__________________
Jan
Each day of life is a precious gift from God. - Charles H. Spurgeon
California gal is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-18-2007, 07:41 AM   #18
Pearl-ExPert
 
twinkle's Avatar
 
Join Date: Jan 2005
Location: Wisconsin
Posts: 2,089
Default

Keeping you and your family in my thoughts and prayer.

Hugs!
__________________
Lynn
twinkle is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-18-2007, 07:59 AM   #19
Total Quack
 
Shell's Avatar
 
Join Date: Jun 2004
Location: too busy to care right now
Posts: 97,118
Default

Praying, Kristy.
__________________
~~*Shell*~~
Shell's Stuff

Photography Site


Shell is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-18-2007, 09:15 AM   #20
Insane Embellisher
 
Shelley Davis's Avatar
 
Join Date: Jul 2005
Location: Transplanted from Seattle to Toledo, Ohio
Posts: 875
Default

Hi Kristy,
I will be praying for you all. Can they put her on an Apnea Machine? As a foster mom some of the newborn babies come home this machine because they were premies. It sounds an alert when the babies have a change in breath or respiration.
Please let us know what the dr. says. Hang in there!
__________________
Shelley

What do I love doing best?
Enjoying my one year old gifts from GOD!
Shelley Davis is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-18-2007, 11:40 AM   #21
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

Our appt for the EEG is scheduled for January 29th. That is the earliest they can get us in. For appt with the Neurologist it is on Feb. 2nd as they want the EEG information.

The nurse asked me if Tennisyn takes naps--I said laughing "What is that?" She hasn't taken naps since she was 1 yo. BUMMER!! The nurse kinda laughed.

Thanks for all the prayers and thoughts. You are all awesome.
__________________
SB Mom & Then Some!!
Trust in Our God!

Last edited by tenmonkey; 01-18-2007 at 06:48 PM..
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-18-2007, 06:17 PM   #22
Gabfest Goddess
 
Join Date: Jan 2005
Posts: 7,518
Default

Praying for you and little Tennisyn. I cannot imagine this at all. I will keep up prayers until you post that she is all better again!
__________________
~J
jm_donahoe is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-28-2007, 03:51 PM   #23
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

Please pray for knowledge, answers and peace at tomorrows EEG appt and Friday's Neurlogy appt.
__________________
SB Mom & Then Some!!
Trust in Our God!

Last edited by tenmonkey; 01-28-2007 at 04:57 PM..
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-28-2007, 05:20 PM   #24
Pearl-ExPert
 
twinkle's Avatar
 
Join Date: Jan 2005
Location: Wisconsin
Posts: 2,089
Default

Tennisyn, your family, and her doctors will be in my thoughts and prayers.
Hugs!!
__________________
Lynn
twinkle is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-28-2007, 05:23 PM   #25
Dirty Dozen Alumni
 
Lauraly's Avatar
 
Join Date: Jul 2004
Location: Montana - Big Sky Country!
Posts: 5,254
Default

I just found this thread...but am praying for you and your daughter! How scary it is to know something is wrong with your child (and especially when they don't breate!) but you can't find any answers! Waiting can be one of the hardest things... In the mean time...I pray God will give you such a strong peace...the kind only He can give!
__________________
Laurie
Lauraly is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-28-2007, 06:17 PM   #26
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

Thank you so much for all your prayers and thoughts. The enemy is really beating me up.

Today, Tennisyn fell and I don't think I hit one foot on the floor to get to her. She was fine. My DH said "Honey, try not to panic as that just might throw her into another spell." It is really hard though. I was in tears by the time I got to her.

If I don't hear her for awhile, I am finding myself calling her name, running to find her. She looks at me with her Big Brown Eyes!

I know that God is my everything and I believe that he is in control. But, it is real hard at times especially when the enemy is knocking at the door.

Thanks again girls.
__________________
SB Mom & Then Some!!
Trust in Our God!
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-28-2007, 07:55 PM   #27
Watercolor Wizard
 
hollylogic's Avatar
 
Join Date: Oct 2005
Location: Texas
Posts: 8,779
Default

hugs, prayers and good thoughts for your daughter at her appointment tomorrow. . .
__________________
Holly
InkPaperStamps: When you're hot. . . .
hollylogic is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-30-2007, 06:52 AM   #28
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

Good Morning,


We haven't found anything out yet. We have the Neurology appt on Friday and that is when WE PRAY/HOPE to get some answers.


The person that was doing the EEG test yesterday was asking questions and he said that it sounds like what they call a " Childhood Drop Attack". I am going to do some reach on the "Childhood Drop Attacks". He said that he is no Dr and the Neurologist will go over everything with us.


He was kind of stern with me on the fact that we should have been in there a long time ago regarding this. I told him following and listening to the Drs. He said that if this happens again---we need to get in there.


I am not sure if he saw something on the screen. There were alot of wires of Tenny. I saw taken back when I walked into the room--to be honest with you, it scared me seeing her all wrapped up with wires everywhere on her.


Chris went back into the room in the beginning as that is who Tenny wanted back there. She thought it was a regular Drs. appt. She was screaming, so I went back there and calmed her down. She fell asleep after I rubbed her tummy and sang Jesus Loves You to her.(That is our nighttime song).


I will keep you posted about Friday. Thanks for your prayers and thoughts.

Blessings~
__________________
SB Mom & Then Some!!
Trust in Our God!

Last edited by tenmonkey; 01-30-2007 at 09:42 AM..
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-30-2007, 05:07 PM   #29
Die Cut Diva
 
pinkhedgehog's Avatar
 
Join Date: Feb 2005
Location: I'm in the secret sister protection program.
Posts: 3,144
Send a message via MSN to pinkhedgehog Send a message via Yahoo to pinkhedgehog
Default

Praying for you both, and the Dr.'s
__________________
~~Heidi~~
The cost of living hasn't affected its popularity.
Hedgehog Ink~~The Blog

www.pinkhedgehogpapercrafts.com
pinkhedgehog is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-30-2007, 08:35 PM   #30
Glitter Guru
 
conductorchik's Avatar
 
Join Date: Jun 2005
Location: In a state of procrastinationitis.
Posts: 5,486
Send a message via Yahoo to conductorchik
Default

Just found this thread.....you will be in my thoughts. I only understand a little of what you are going through. My DD had breathing difficulty when she was an infant, you bet your batootie I was in there with the slightest sound or lack of sound, don't let DH or ANYONE tell you that you are overreacting. A mom's instinct is the best instinct. Trust your gut, and never let those feet hit the floor.
__________________
Kris - Wife of 1, Stamps til 2, Mom of 3!
CNY/STNY STAMPAPALOOZA FEB 26th - HURRY!!!!!
conductorchik is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-30-2007, 10:20 PM   #31
Stazon Splitcoast
 
chrisations.ink's Avatar
 
Join Date: Mar 2006
Location: sunny southern california
Posts: 20,113
Default

Praying for you, Chris and Tenny, for calmness, peace, and patience to wait for the answers. Praying for Tenny's medical team, thoroughness and wisdom.

Hugs,

Christine M.
__________________
christine m. aka summer and weekend stalker
DOT INK (My yadda yadda)
Don't magnify your problem . . .Magnify your God
PROUD MEMBER OF THE RED DIVAS!
chrisations.ink is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-31-2007, 03:59 AM   #32
Forum Fanatic
 
Littlekel90's Avatar
 
Join Date: Feb 2006
Location: Beautiful View, PA
Posts: 9,233
Default

Oh, Kristy!

I just found your thread. I will pray for little Tenny, your family, and the doctors to find out what is wrong. I can imagine how scared you are, and I know your husband is just trying to keep you calm. I am a protective mom, too, so I completely understand. It would be very difficult to let her out of my sight as well.

Love and prayers for some answers soon!
__________________
Kelly L
My "Wishin I Was Stampin" blog
June & July GDT at FromTheHeart
Barbaralynn's Summer Swap

I'm a BRAK member. We would love for you to join us!
Click here for more information!
Littlekel90 is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 01-31-2007, 04:02 PM   #33
Gabfest Goddess
 
Join Date: Jan 2005
Posts: 7,518
Default

Praying for you both. What a scary scary thing for all of you. Poor little Tenny, I cannot imagine that at my age, nevermind her tender age!
__________________
~J
jm_donahoe is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 02-01-2007, 04:07 PM   #34
Total Quack
 
Shell's Avatar
 
Join Date: Jun 2004
Location: too busy to care right now
Posts: 97,118
Default

Just to let you know that I'm thinking of you guys and praying for answers tomorrow.
__________________
~~*Shell*~~
Shell's Stuff

Photography Site


Shell is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 02-01-2007, 04:33 PM   #35
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

Quote:
Originally Posted by Shell
Just to let you know that I'm thinking of you guys and praying for answers tomorrow.
Thank you so much for the prayers and thoughts. I am sitting on pins and needles waiting for tomorrow!!
__________________
SB Mom & Then Some!!
Trust in Our God!
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 02-01-2007, 07:40 PM   #36
Crimping Master
 
*AStampinFool*'s Avatar
 
Join Date: Nov 2004
Posts: 1,064
Default

My heart goes out to you and your daughter - I have been exactly in your shoes.

My son stopped breathing several times when he was three days old. It took over two months, seeing several different doctors and specialists, and running all kinds of tests before they ran a barium Swallow. It was then my son was diagnosed with reflux. My son was in that 5% that choked with reflux. He ended up being on a heart monitor for TEN MONTHS because his reflux caused Apnea and bradia cardia (sp???) (he would stop breathing and his heart rate would drop).

It was very terrifying during the first two months of his life because they sent up home from the hospital with him on a heart monitor and giving me a 5 minute crash course on how to resusitate him when or if he stops breathing again.

Hopefully - they will figure things out with your baby soon and you can start to have peace of mind - just by knowing what it is and how to deal with it.

I will keep your daughter in my prayers.

Please keep us all updated.

Sue
*AStampinFool* is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 02-02-2007, 05:41 PM   #37
Crimping Master
 
tenmonkey's Avatar
 
Join Date: May 2005
Location: Trying to Stamp~But heading off to Sports, School & whatever else can fit into a day!!
Posts: 1,111
Default

Well, here is what we found out today. This Dr. was so nice---He wanted to make sure before we left that we had all our questions answered and gave us some more information on what Tenny has. I kinda think they might have seen all the papers I had in my hand when I walked in there.

She has what is called "Apneic Seizures and Piracetam". One of these, there is a tiny seizure at the end when she comes out. The Dr. described exactly what happens when she goes into these spells.

He said that with increasing age, spells become less common and will finally disppear by the age of 5, so they do not treat it. This is the 5% that I spoke about in an earlier post--she is one of the 5%. He said that these children that do have this are all normal, smart lil' people and do great after all said and done.

He explained what we are to do when we think she is going to go into one of these spells and she should come out of it then. But if we do not catch it in time, we are to breathe in her to get her to breathe again. Call 911 if we need too.

He said that she has NO IDEA that this happens.

He said to tell the school when she starts school, so that they are aware of this and they know what to do.

Please continue to pray for healing in this situation and peace. I am thankful that we know what to do now, but I am still pretty scared about her being alone, falling or crying.

Thanks...Blessings~
__________________
SB Mom & Then Some!!
Trust in Our God!

Last edited by tenmonkey; 02-02-2007 at 05:54 PM..
tenmonkey is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 02-02-2007, 06:06 PM   #38
Watercolor Wizard
 
kikikaren's Avatar
 
Join Date: Apr 2006
Location: Somewhere, out there...
Posts: 8,193
Default

I'm so glad they figured it out! Saying a prayer for your sweet little girl...
kikikaren is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 02-02-2007, 06:14 PM   #39
Die Cut Diva
 
pinkhedgehog's Avatar
 
Join Date: Feb 2005
Location: I'm in the secret sister protection program.
Posts: 3,144
Send a message via MSN to pinkhedgehog Send a message via Yahoo to pinkhedgehog
Default

It at least must be a little less scary because it has a name, she'll grow out of it, and you now are armed with lot of information. You're still in our prayers!
__________________
~~Heidi~~
The cost of living hasn't affected its popularity.
Hedgehog Ink~~The Blog

www.pinkhedgehogpapercrafts.com
pinkhedgehog is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Unread 02-02-2007, 06:50 PM   #40
Embossing Fanatic
 
Join Date: Jan 2005
Location: Macedonia, Ohio
Posts: 67
Smile

I am glad you finally have an answer to what is going on. Take care of you and your lil' one!!

Kellie
Kellie1Sven is offline  
Tweet this Post! Share on Facebook Reddit!! Pin on Pinterest! Share on Google+!
Reply With Quote
Reply





Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off