Not sure if I can post this here but thought I'd give it a try.
I got this link from a friend whose daughter has the same disorder as my daughter. It's super rare (less than 200 people in the world diagnosed with it) and called Glucose Transporter Type 1 Deficiency Syndrome (GLUT1 DS).
You can read more about it here (
www.glut1ds.org).
There are some great strides being made in researching for a cure or better treatment for our children.
LORI Designs is offering a SUPER CUTE digi for $5 to help us raise money to look for a cure and provide support to families living with this challenging disorder.
Check it out here:
http://byloridesigns.blogspot.com/20...ease-read.html
I haven't used digis before but will be buying this one since it's for a great cause and is an excuse to check out digis!
Here's the card from her blog using the digi... sooooo cute and what awesome coloring!