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A friend NOT at convention said she heard through another party that Shelli made a personal announcement about some ill health. I REALLY hope that is a mistake. Does anyone have information to clear up the rumor?
Shelli announced she suffers from this disease. It's not life threatening, but it's serious. It's being talked about at SUDSOL right now. The autoimmune disease is called Sjogrens.
Convention is a wonderful experience. I have been a demo over 7 years and have gone to 2 conventions. I wish I were there now. And one always does cry at convention.
__________________ Debra the Debrameister Nagigator Mingler Gallery My Blog: Yellow and Blue SU Creative Crew Design Team Member-May-August 2011
A wonderful wealth of business only Stampin' UP! ideas, business discussions, class ideas and art gallery. SUDSOL has been around for a long time. It really kept me going back in the early years of my demonstratorship. You can read all about it here, and I encourage anyone to try the 2 week trial to see what you think for yourself:
SUDSOL stands for Stampin UP Demonstrators Shareing On Line. Yes it is a wonderful resourse, yes it is for Demo's only and yes it does have a fee with it. It is also like an email group. Depending on how you have your set up you can get over 100 emails a day. Some do digest and some do web read only.
I speak the truth not so much as I would, but as much as I dare, .......and I dare a little more as I grow older. -Michel de Montaigne, essayist (1533-1592)
Shelli announced she suffers from this disease. It's not life threatening, but it's serious. It's being talked about at SUDSOL right now. The autoimmune disease is called Sjogrens.
ugh. So sorry to hear this. Even when it's not life-threatening, auto-immune diseases are always so unpredictable, it's a huge frustration. So often you never know when a flare is going to interrupt your life. My thoughts will certainly be with her.
I have had this illness for the last 7 years, It was discovered after I started treatments for RA, There are good days and bad, but the thing to do is to keep plugging away.
You know, I got this funny feeling when I was reading one of Shelli's pages either in Onstage or Stampin Sucess...and she was talking about taking a "nap" and strange as it sounds, it made me wonder!
Having Ulcerative Colitis & Fibromyalgia, I know personally how yucky these autoimmune diseases can be and "naps" can be a necessary part of life during flare ups.
Well, from what I read about this condition it appears to be something that is livable. I'm hoping that hers is not a condition that is secondary to rheumatoid arthritis, lupus, or scleroderma :(
I'm here at convention ... and Shelli did mention this while talking about dreams, the context was "one of my dreams is to be able to go back to wearing high heels without discomfort". She mentioned how much she loves to wear heels ... and how having sjogren's has affected her. Due to it, which she emphasized was not life threatening, she did say that she has to wear "flats" and open toed shoes. With that said, she's had PLENTY of cute shoes each day!
WOW...i know how hard and just plain "freaky" auto-immune diseases are...
when i was pregnant with my 6 year old, i got "transverse myelitis" at 16 weeks...very "strange"...been in pain since...but - you learn to cope and put your faith and hope in the Lord...HE hasn't left me yet...thank goodness...
looking forward to giving her a big HUG at convention next week...
Hopefully Shelli will find a great doctor and they can treat the disease. Medicine has come a long way on auto-immune diseases. She is in my prayers, too.
I suffer from Scleroderma, RA, and Sjogerns and know how the flares are. My doc told me to think of naps as one of my "meds" and I do!!! And she's right about shoes (although that's not part of the Sjogerns) but I only where flats now.
Having Ulcerative Colitis & Fibromyalgia, I know personally how yucky these autoimmune diseases can be and "naps" can be a necessary part of life during flare ups.
Hugs for Shelli
I have Fibro also...was first diagnosed with RA so I was sooo glad to have this instead! It is common to have more than one auto-immune disease (I have asthma, allergies, Celiac and Fibro). And yes, naps can be lifesavers! Hope Shelli is doing well, hugs to her!
Wow; lots of thoughts & prayers going out to Shelli......
I've noticed several posts from ladies with Fibro, RA, etc. in addition to some type of tummy trouble. I also have Fibromyalgia & have recently been diagnosed with IBS. What's the deal? Do you think there's some connection? The winter is especially hard for me because my elbows & hands hurt so much I can't stamp!!!!!
Jennifer, it's odd but true....quite often someone with one autoimmune sooner or later comes up with additional ones. Not fair, huh? I was diagnosed with fibro first, then a few years later multiple sclerosis. My neurologist was the one that told me about people having more than one disease.
Wow; lots of thoughts & prayers going out to Shelli......
I've noticed several posts from ladies with Fibro, RA, etc. in addition to some type of tummy trouble. I also have Fibromyalgia & have recently been diagnosed with IBS. What's the deal? Do you think there's some connection? The winter is especially hard for me because my elbows & hands hurt so much I can't stamp!!!!!
Oh, it's just the beginning sweetie. Most of us with Fibro suffer with many other autoimmune diseases like this as well. It's a very well known fact that they go hand in hand with one another.
I would recommend doing some detailed research on Fibromyalgia. A lot of the symptoms you have may find you thinking you are crazy, but are actually some part of the Fibro or another AD.
Try to eat a good healthy diet, drink lots of water, get pleanty of rest and take your supplements.
__________________ Stampin' Up! Demonstrator
Gail Binette -SOMEBUNNY FROM MAINE HELP! VICTORIA WON'T TELL ME HER SECRET Visit my Blog http://gbinette.blogspot.com/
I have Fibro also...was first diagnosed with RA so I was sooo glad to have this instead! It is common to have more than one auto-immune disease (I have asthma, allergies, Celiac and Fibro). And yes, naps can be lifesavers! Hope Shelli is doing well, hugs to her!
It is amazing how these go hand in hand. I have lupus, sjogren's, asthma, combined autoimmune thyroid disease and pcos. I am *lucky* in the sense that I don't have organ involvement with the Lupus. My worst is the joint pain and vasculitis. I only really flare during my cycle and when I am on antibiotics. It's a pain and I certainly feel for you all (and Shelli) who are also dealing with autoimmune diseases and well as any other serious illnesses.
I also have FM. I talked to Shelli at convention and she has a very positive attitude. I told her I am in a yahoo group with other demos with auto immune diseases. She thought it was great that demos who struggle with these things are encouraging one another.
__________________ Sue, Nana of twelve! God Bless America and our Troops!!
I have Fibromyalgia too! I started having seizures recently as well and the doctors have yet to find a cause....so maybe we should have a thread on this LOL
As for Shelli.....I'm praying for her! Maybe we should send cards too? I think that's what I'm going to do ;)
Quote:
Originally Posted by stitcher1
I have fibro, allergies, and neck and back problems. Sounds like we should start a thread just for this! LOL
I have 9 auto immune diseases and it is a struggle everyday! the key is attitude! whenever I am in a flair I keep a list of what I have done that day- then when I think I didn't accomplish anything I can see I at least tried and did something. keep your head up :-)
__________________ Brenda
good wine, great food, excellent company-
makes a heart happy
Although I am no longer a demo (was for 3 1/2 years) I still feel a connection to SU! and Shelli. I met her in SLC in 2005 and she was so nice and grounded. Knowing she now suffers from an AD hits close to home with me. One of my best friends mom had sclederma and several other AD's I can't remember right now. Now my friend is going through testing for it. It is great to hear so many of you with these dieases speak so openly about your ups and downs with these. My thoughts and prayers are with Shelli and each and every one of you.
__________________ Heather SAHM to Kyra (1/03) & Austin (6/06) "Stamping is like a box of chocolates...You never know what you're going to get." Paying it forward one birthday at a time.
Yes AD does run in families. My Sis has Lupus w/Sjogrens and I have FM and CFIDS. Convention took a tole on me but I wouldn't miss it! I am thankful that I have my health undercontrol but mu Sis has the form of Lupus with the organ involvement and her kidneys are shutting down. I want to be tested for a transplant but I have more health problems and my Dr. doesn't know if it is a good idea. If I am a match you bet I will go for it, I couldn't bear to watch her suffer if I could help. My Sis says she just has the dry mouth and I think that the swelling of her feet might be a different issue?
__________________ Stamp, stamp, stamping ahhh life is good :o)
My heart goes out to Shelli and I wish her the best. I was diagnosed with Hashimoto's disease at 24, Lupus (SLE) at 32 and Antiphospholipid Antibody Syndrome at 43. I consider myself very fortunate though because my symptoms are under control; and while the SLE has included organ involvement at some points; mostly I feel pretty well most days. Tired and swollen others - but the good days outweigh the bad!
__________________ Donna Love my puppies! Thor 5 years; Maddee 5 years