This card is going to a very special family with a very heartwarming situation. Easton was born 8/23/12 with a rare disease known as Epidermolysis Bullosa (EB). In this condition, there is a defect in the connective tissue of the skin and mucous membranes that causes the skin to be so fragile that the slightest friction, minor injury, heat, rubbing, or scratching causes severe blistering —inside (such as the mouth, stomach, esophagus) and outside the body. These blisters can cause serious, sometimes fatal problems, when they become infected. The systemic and repetitive nature of the blistering leads to blindness, swallowing and breathing difficulties, scarring, infection, disfigurement, disability and dehydration. Ultimately, such devastating effects can produce a high rate of mortality. In fact, 87% of babies born with one of the more severe forms of EB do not live more than 12 months. There is NO cure for this horrific disease. Sufferers of EB have compared the sores with third-degree burns. They live in unthinkable pain.
With skin as fragile as butterfly wings, EB patients are dubbed “Butterfly Children." On the outside, physical wounds and limitations brought on by this disorder prevent them from normal daily activities enjoyed by other children. On the inside, their dreams are the same as any child who loves, plays, learns and grows despite the pain and impediment caused by their disease.
Easton's parents are with him in Cincinnati while their other 3 boys are still back in Syracuse, NY. As a parent, I can't imagine how hard it is for them to be so far away from their children. I am hoping this card gives them a little moment of peace. You can read more about Baby Easton's story here on Facebook: https://www.facebook.com/SupportBaby...17708921611213
Or you can make a donation here: http://igg.me/p/212935?a=1117035
and a BIG Thanks to Cindy (Mothermark) for bringing this story to Teapot Tuesday!
stamps- PTI Everyday Blessings
paper- PTI white
Ink- versafine black, various alcohol inks
Date: Tuesday, October 23, 2012 GMT Views: 1164
Registered: April 23, 2006 Location: Looking For Teapots! Posts: 59993
Wed, Oct 24, 2012 @ 2:49 PM
What a wonderful card for Baby Easton and the family.....and how appropriate...butterfly children...I truly wish there was not such a thing. Thank YOU for bringing this sad story to our attention. I truly hope that our cards will lift the spirits of the family....I think this is one of the saddest destinations we have had.....a baby should not be in that kind of pain!