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Old 11-18-2011, 03:36 PM   #2281
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Haven't been on for a long time, just found out we are moving back to Canada-Ottawa area. Couldn't remember if there was anyone on here from Ontario or not. If so I would love to chat with you to see what services are available.
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Old 12-27-2011, 10:21 AM   #2282
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JCI.........

Hope everyone is having a peaceful holiday season!

DS is doing great. We had his IEP meeting on 12/08 and set some new goals - including one for "proper greetings" to people when they say hi to him. His APE teacher noticed DS has tight hamstrings from tiptoe walking so now we're keeping an eye on that when he is at home.

We did get a picture with Santa this year for the first time in 7 years - yippee! As I had posted before, the volunteer group I work with at a local hospital did a special-needs Saturday with Santa session. We had a Santa who is comfortable interacting with special needs children and we had a few teachers and helpers from DS's school come to help facilitate and offer a familiar face to the kids. We had 16 kids take pictures with Santa and every single one of them walked right up and sat with Santa! The pictures were amazing and it was a wonderful day all around.

We've agreed to partner with a private school to have them bring their students to the hospital for pictures while the kids' parents do some Christmas shopping. Win-win situation for everyone

Wishing everyone a wonderful 2012!
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Old 01-02-2012, 05:32 PM   #2283
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I pray you have all had a smooth holiday season, or as smooth as it can go. I can't say it has been so smooth here. Our 10 yr old has started running off. Do any of you have a runner and have any advice? We have put alarms on our home doors but he took off from our oldest son's house last night while we were all sleeping. Thank God we found him before he froze. My husband spent the rest of the night sleeping on the floor in front of the bedroom door.
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Old 01-08-2012, 04:59 AM   #2284
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Hi Ladies,

I have a 15 year old daughter, Jaden, who is Autistic, and I have run into a problem.

Last April, before Jaden started high school her special-ed coordinator wrote her a new IEP. Last week the Special-Ed coordinator at the high school requested an IEP meeting with us. Aren't IEP's supposed to be good for 3 years? We've had trouble with them fulfilling the terms of her current IEP causing us to have to schedule meetings with teachers and the coordinator. We've had to provide copies of the IEP to astonished teachers, proving that Jaden does in fact have a right to 1on1 para support, in addition to other things they were unwilling to provide.

Now they are calling for an "IEP meeting". If they attempt to re-write it, I will refuse to sign it.

Can they re-write this without my consent?

If so what's my next step? The Superintendent, the office of special instruction or an attorney?

Has anyone ever had to seek an attorney for such a matter? Aren't they provided free for the disabled? Where do I find that information?

Of course, this is all further complicated by the fact that I am employed by the school district which puts me in the position of biting the hand that feeds me.

Any thoughts and advice would be appreciated.
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Old 01-08-2012, 05:25 AM   #2285
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The IEP is good for one year. The MFE (multi-factor evaluation) is good for three years. The MFE establishes the need for services, and the IEP sets goals and spells out how those goals will be measured and met.

Ask for a copy of the IDEA (Individuals with Disabilities Education Act) rights handout. They have to give you this. It spells out exactly what rights you have to get your daughter the services she needs. Yes, you may have to get a lawyer who specializes in IDEA to force the schools to do what needs to be done, but to my knowledge they are not free, although there may be public services that help.

You do have the right not to sign an IEP you disagree with, but I would encourage you read that IDEA handout carefully and get a lawyer to review the IEP first if they try to take services away. You also have the right to take a social worker or lawyer or even a knowledgeable friend to the IEP meeting. There's a place on the meeting acceptance form to indicate that you're bringing someone.

I hope someone else will weigh in on the lawyer issue. We've not had to go that route, praise God. Friends have, though. I can talk to them to get more info if necessary.
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Old 01-08-2012, 05:33 AM   #2286
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Oh, I forgot. It's fairly normal even in a really good, supportive school, to need to have meetings with teachers to insure that IEP goals are being met. Most inclusion teachers have very little training in special ed, and even special ed teachers have curriculum that they've relied on to help others that aren't necessarily helpful to your child.

For example, a friend whose son is sensitive to screen flicker isn't helped at all by computer-based learning, but his Language Arts intervention specialist didn't know this. She started him on a computer-based curriculum, and my friend had to call a meeting to get that changed. She took another intervention specialist who knew her son's learning style well to the meeting with her. Once they had their talk, everyone got on the same page and it worked out well.

I hope this whole situation gets worked out in your daughter's best interests with a minimum of drama.
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Old 01-08-2012, 06:50 AM   #2287
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Quote:
Originally Posted by JampsterStampster View Post
Hi Ladies,

I have a 15 year old daughter, Jaden, who is Autistic, and I have run into a problem.

Last April, before Jaden started high school her special-ed coordinator wrote her a new IEP. Last week the Special-Ed coordinator at the high school requested an IEP meeting with us. Aren't IEP's supposed to be good for 3 years? We've had trouble with them fulfilling the terms of her current IEP causing us to have to schedule meetings with teachers and the coordinator. We've had to provide copies of the IEP to astonished teachers, proving that Jaden does in fact have a right to 1on1 para support, in addition to other things they were unwilling to provide.

Now they are calling for an "IEP meeting". If they attempt to re-write it, I will refuse to sign it.

Can they re-write this without my consent?

If so what's my next step? The Superintendent, the office of special instruction or an attorney?

Has anyone ever had to seek an attorney for such a matter? Aren't they provided free for the disabled? Where do I find that information?

Of course, this is all further complicated by the fact that I am employed by the school district which puts me in the position of biting the hand that feeds me.

Any thoughts and advice would be appreciated.
Susan has given you some really good advice. I too am lucky that my son's school is really good about keeping me informed and keeping a close eye on his needs.

Here's another source that maybe helpful. I found it on the American Autism Society's
website.

This one is specific to Washington State.

Hope this helps.
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Old 01-08-2012, 09:30 AM   #2288
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Thank You, Ladies. I'll touch base after the meeting and let you know what happens.
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Old 03-12-2012, 01:36 PM   #2289
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Hi All,
Stopping in for a visit. This thread was such a lifeline for me almost three years ago now. Don't know how I got through those very hard pre- and post-diagnosis years ... but we managed!
Glad to see you are still here, encouraging Moms in their daily living with autism.
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Old 03-16-2012, 02:01 PM   #2290
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Hello,
My name is Jaima and I just found this board.
I am in the process of trying to figure out what is going on with my daughter.
We do know she has sensory issues but if she is on the spectrum we do not know.
She is almost 3 and has very few words.
That is the main reason we started having her looked at.
That and having meltdowns for odd reasons and she does not sleep good.
She also does the hand flapping that we used to just think she was excited but now it has gotten more frequent and she runs back and forth through the house while doing it and chanting.

She has been going to speech therapy and OT for a few months now and seems to be making good progress.
I am trying to get her into a developemental doctor to see what she thinks is going on.
Is there anything else I can do in the meantime to try and get this figured out?
It sounds like most of you have been through this for sometime now so any advice would be greatly appreciated.

My daughter is Jackie and I also have a 6 yr. old girl, 5 yr. old boy and 6 month old baby.
We also own our own business so DH is gone most of the time.
I just took my 2 oldest to his shop because I had a bit of a breakdown since Jackie hasn't been sleeping good this week.
I haven't gotten much sleep and just feel overwhelmed and confused on what to do for her and where to go for help.
Thanks for listening and any advice
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Old 03-16-2012, 06:55 PM   #2291
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Welcome, Jaima!

We've had incredible luck with our developmental pediatrician not only to diagnose but to guide treatment. Every child on the spectrum is different, and someone with a lot of experience is better positioned to make recommendations on a particular child.

Best wishes to you. This is hard, and you're in the worst place now. It WILL get better. Honestly. Especially if you're already seeing good progress in OT and Speech!

Big, big hugs,
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Old 03-25-2012, 10:21 AM   #2292
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Quote:
Originally Posted by LateBlossom View Post
Welcome, Jaima!

We've had incredible luck with our developmental pediatrician not only to diagnose but to guide treatment. Every child on the spectrum is different, and someone with a lot of experience is better positioned to make recommendations on a particular child.

Best wishes to you. This is hard, and you're in the worst place now. It WILL get better. Honestly. Especially if you're already seeing good progress in OT and Speech!

Big, big hugs,
Susan
Thanks Susan for the encouragement and hugs
We are going for the consultation with the developemental doctor this week.
So, will see how that goes.
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Old 03-27-2012, 02:17 PM   #2293
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Jaima -

Hope all goes well with the developmental doctor; please check back in and let us know.

There is a wealth of knowledge on this thread so ask questions, share experiences, etc. We all understand and we try to help each other too
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Old 03-27-2012, 02:18 PM   #2294
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Quote:
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Hi All,
Stopping in for a visit. This thread was such a lifeline for me almost three years ago now. Don't know how I got through those very hard pre- and post-diagnosis years ... but we managed!
Glad to see you are still here, encouraging Moms in their daily living with autism.
Kristin
Kristin - HELLO!! I'm so glad you checked in - I was thinking about you last week and was hoping all was OK with you and the family.

Hugs to you
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Old 03-27-2012, 02:22 PM   #2295
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Ready to Light It Up Blue on April 2nd???

We've kept our blue lightbulb in our outdoor fixture since Light It Up Blue Day last year.

Took DS to the dentist 2 weeks ago for his cleaning. Hooray - still no cavities! We will go back in another 3 months to do another cleaning and check to see if all of his molars have come in.

We've discovered it's easier for DS if we go for cleanings every 3 months; it goes faster and he remembers the girls in the dentist's office easier if he sees them that frequently. Mr. Budget doesn't like it so much, but whatever is easiest for DS........

Glad to see some chatter on this thread....
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Old 04-02-2012, 04:29 AM   #2296
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LIGHT IT UP BLUE!!!!!
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Old 06-26-2012, 01:23 PM   #2297
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It's been quiet on this thread for a while now.........

JCI.........

DS had his most recent dentist visit on the 22nd. It was by far the most "pleasant" visit we've had to date. He actually laid down on the table and was pretty good about opening his mouth.

We still had sweating, crying and struggling - but nowhere near what it has been in the past.

He'll go back in August for the sedation visit where they will sedate him to get x-rays (never been able to get them in 6 years), get sealant put on his molars and get a thorough dental/orthondontia exam. We know he's got a viscious overbite - that's from letting him keep his binkies for too long It's payback time for that!

We took DS to the fair last weekend and he did great with all the crowds and noise. Loved the ferris wheel so we rode both the "big" one in the main part of the fair and rode the "little" one twice in KiddieLand. A pleasant day and the first time DS had ever gone to the fair.

Sending hugs out to all and hope everyone is having a safe and happy summer.....
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Old 07-02-2012, 12:30 PM   #2298
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Hi everyone! Been MIA for quite some time but I'm here again.

Hi Lorraine! Speaking of dentist visits, we brought DS last month too for his six-month check. It wasn't how I had hoped it would be, ie no qualms and just sit on the chair (yeah right), but they had to wrap him with the blanket again coz he wouldn't stop crying out loud. Good thing they're prepared for situations like this, whew! Anyway, no cavities (thankfully) but I know it won't be for long but I guess I'll just worry about it when we get there.

DS is going back to summer school next week and they have a pretty busy and fun filled schedule coming up.

How's everyone doing? Have a happy and safe 4th of July!
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Old 07-09-2012, 05:25 AM   #2299
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Hello All,
Kayla is off to summer school.. its only for 3 hours but I am excited... She has been pretty good since the last day of school on June 24th, but it is time to get back... She has been not sleeping well again, so I have not been sleeping well...
She has to go to the dentist on Aug 7th, but they will be putting her out and doing the cleaning, x-rays, any fillings if needed and putting the sealant on her teeth... I am very nervous, but to see what she goes thru just for the dentist to look into her mouth.
This past Saturday I had a birthday party for both of my girls, Kayla turned 7 and Alyssa will be 9 tomorrow. It was so fun to see Kayla and her friends from school playing together.. She has come a long way!!!

Have a great day!
karen
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Old 08-15-2012, 01:39 PM   #2300
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JCI.........

Tomorrow is the dentist appointment for DS to be sedated so they can do x-rays, put sealant on his molars and do a thorough orthodontial exam. Wish us luck with the day

I got an email about a local hair salon that will be opening in September exclusively for autistic and other special-needs children and adults. They are going to have a sensory wall, wheelchair-accessible hair washing stations and a specially trained therapy doggie. Can't wait to check it out when they open! Haircuts are still so traumatic for DS. I quit taking him to a local hair salon that is just for kids because he would scare the other kids so much with his crying and screaming.

His after-school care provider cuts his hair but even she struggles with getting him to calm down afterwards and again, he scares the other kids in her care.

It would be awesome to have a place to go where we could get haircuts and not worry about scaring other children.

Hugs to everyone and hope things are well.
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Old 08-16-2012, 01:05 PM   #2301
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OK - we got through the dentist........

The xrays they were finally able to take showed 2 in-between teeth cavities so we got those filled. Sealant was applied to 8 molars and they did a thorough cleaning. Plus they extracted 2 of his baby teeth on the bottom to make way for the permanent ones coming in that are much wider than the baby teeth were. Taking the baby teeth out now allows his other teeth to "shift" a bit and that will free up the extra space the 2 new permanent teeth will need.

While they were cleaning his teeth, one of his upper baby teeth actually fell out on its own - it had been wiggly for over a week now so we knew it was ready to come out.

Glad to be done with the visit and now we've got 18 months of dental care payments to make.....
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Old 08-16-2012, 01:10 PM   #2302
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Oh, Lorraine! Big hugs!
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Old 09-06-2012, 12:53 PM   #2303
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Oh, Lorraine! Big hugs!

Thanks Susan!

DS started 4th grade this week and I was a bit apprehensive about it since he is in a new classroom with a new teacher. He knows the teacher from group outings with the other special day classes but to actually be in her room is a different thing.

Well, he just marched right in the room, found his desk, sat down and started chattering away with the new teacher on the first day of school!! Yippee!!

We'll be celebrating his 9th birthday next week with a pool party at the local pool where he takes weekly swim lessons. We've invited all 3 special day classes to come and swim. It's an indoor, heated pool and the lifeguards are trained to work with special needs kiddos.

We'll be having pizza and chocolate cupcakes - those are 2 of my son's favorite things to eat

The new school year is off to a good start so far - knock on wood!!
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Old 09-07-2012, 01:48 PM   #2304
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Oh, Lorraine! I'm so glad the start of school was so good! Sounds like your DS had a similar experience to mine. New class, new teacher, but he'd already worked with them before and ran into the building on the first day of fourth grade.

Happy birthday to your little guy! Mine turned ten in August.
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Old 09-07-2012, 01:58 PM   #2305
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Oh, Lorraine! I'm so glad the start of school was so good! Sounds like your DS had a similar experience to mine. New class, new teacher, but he'd already worked with them before and ran into the building on the first day of fourth grade.

Happy birthday to your little guy! Mine turned ten in August.
Happy belated birthday to your little guy!!

Goodness, our first day of 4th grade stories are similarly happy aren't they??!!

Yippee!!
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Old 10-24-2012, 01:06 PM   #2306
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Hope everyone is well........

DS is excited about Halloween but has changed his mind 3 times about what type of costume he wants to wear, so for now, we haven't bought anything yet.

DH and I took DS to a local pumpkin patch last weekend. It's a nice one - no rides or loud noises - just pumpkins and hay bales We had the place to ourselves because it was almost 90 degrees outside and that's not exactly pumpkin-shopping weather! Low-key and perfect for DS.

Sending a wave "hi" out to everybody -
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Old 10-24-2012, 01:41 PM   #2307
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we had similar issues with our son, but once we used his focus area to our advantage, then we were able to cobble together a costume just form things around home, and a quick trip to walmart for a couple accessories.

What is your son really "obsessed" over? Bugs, trains, vacuums, Star Wars?
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Old 10-26-2012, 09:41 AM   #2308
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DS is all about Mickey Mouse Clubhouse and pirates right now.

I'm going to try to get something planned out this weekend for him to wear. I'm taking him to a Trunk or Treat event at a local church on Sunday night and that should help us come up with a costume too.
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Old 10-30-2012, 08:10 PM   #2309
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Hello all
I am just checking back in since I saw some activity going on.
My daughter has now had a diagnoses made and is autistic.
We went through the evaluation center also and she will be strarting preschool next week.
I am so nervous to leave her all day in the hands of someone else.
She is only 3 but I think it will benefit her so gonna give it a go.
Good luck to all of you out there trick or treating with your little special ones.

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Old 11-07-2012, 11:30 AM   #2310
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Hi Jaima -

Thanks for checking back in!

OK - the diagnosis is autism. Knowledge is power and now you can move forward with therapies and treatment.

Yes, I know you're nervous about sending your daughter to preschool but it will be just fine. The teachers, therapists and aides are all the right folks to help your little one and you will be amazed at what great work they do. They do it because they have a passion for helping our kids because they certainly don't do it for the money

Keep us posted as to how she is doing......we've all been there and would love to hear what is going on.

I took DS out on Halloween and he did great! He wanted to dress up as a chef so that's what we did. He walked up to the doors and said "Trick or Treat" with no problems. The only thing that made him skittish were the dogs that came up to the front door and barked at him.

Hope all is well with everyone.......
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Old 11-29-2012, 05:41 PM   #2311
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Hello All, just checking in to see how everyone is doing...
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Old 02-04-2013, 11:56 AM   #2312
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Wow - two months and no chatter on this thread......let's fix that!!

Hope the new year is starting out well for everyone.

Over the weekend, DH and I took DS to a local hair salon that just opened up. They cater exclusively to special needs children and adults. I posted about it back in August and was waiting for them to open so we could check it out.

Wow - what a beautiful place! They definitely have a good set-up going on -the sensory play wall was great and they have the hair cutting chairs set up in the back of the room behind a small retaining wall so you don't see them when you walk in.

The cute therapy dog was walking around and since my DS is still skittish around dogs, he wanted nothing to do with being there or interacting with the dog.

We will go back another time to see things when they aren't so crowded - it was their Open House when we went and it was too loud for DS.

But it's nice to have a place like this to utilize because haircuts continue to be a huge problem for DS and he struggles with them every time.

Hugs to everyone -
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Old 02-04-2013, 12:22 PM   #2313
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hello everyone, my name is Zehra
If anyone of you are in MI, especially in Detroit, check out the services in THe Children's Center, I work for that agency and we have an awesome ASD program. We really work hard to offer play therapy and different modalities geared towards the autism spectrum disorders, there is a psychologist on board, psychiatrist, and therapist.
let me know if i can be of any help to you.
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Old 02-26-2013, 11:21 AM   #2314
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bump
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Old 04-01-2013, 12:22 PM   #2315
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April is Autism Awareness Month........

Tomorrow is April 2nd - are you ready to LIGHT IT UP BLUE???

Took DS to the dentist last Friday for his routine cleaning....and it was brutal It took 5 of us to hold him down while they cleaned his teeth...so hard to watch him struggle and feel terrified. He had been excited about it right until we walked in the front door and then it all went downhill. The 3 dental techs working with us were awesome. They all had to wear the face shields because DS loves to spit everywhere as retaliation for the cleaning. The good news was no cavities and the best dental check-up we've had in a few years - yippee!! Then, later in the day, DS says to my sister (who was with us at the dentist) "Auntie, I love the dentist!"

Really???

DS did hug his favorite dental tech on the way out so that was good!

DS goes to a year-round school so he is on Spring Break for 4 weeks. He'll be at the licensed private home daycare that he goes to after school during school days. She's got a rockin' big backyard with lots of fun things to play on - that's one of the reasons we chose her as our daycare provider.

Hope all is well with everyone
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Old 05-15-2013, 01:11 PM   #2316
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Hope all is well with everyone.......

DS is back at school after his Spring Break.

Next dentist appointment is scheduled for July 26th. They want us to bring him in every 4 months for a cleaning so it goes quicker in getting the cleaning done.

How's everyone doing?
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Old 06-11-2013, 12:41 PM   #2317
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Gosh, I feel so alone on this thread!

Hope everyone is doing well.

DS is in year-round school so his last day of 4th grade is July 19th.

I got him the cutest tshirt off of e-Bay. It says "Autistic and Awesome" on it with primary-colored puzzle pieces on it. I got it for him to wear to the local fair we will be taking him to on July 30th. We went last year and he loved the ferris wheel. I've noticed people are more patient and tolerant with him when he has on one of his autism shirts.
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Old 07-11-2013, 01:43 PM   #2318
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We did take DS to the fair and he was fearless with the rides! He loved every stomach-lurching, vertigo-inducing ride! After 3 of those kinds of rides, I was queasy and said "no more for me". Next year, we have vowed to take a friend with us who likes to ride those kinds of rides so DS can ride to his heart's content.

We did get him to go to the Kids Zone but I think it's the last year we'll get away with that. He was too tall for some of the rides and wasn't interested in the more "baby" ones.

He wore his "Autistic and Awesome" shirt and quite a few people noticed it. I found people to be nicer and smile more at him after they saw his shirt.

He's got one more week of school and then starts 5th grade on September 3rd. He'll have a new teacher but will be in the same classroom so hopefully that will help him adjust to the new teacher.

Hope everyone is having a safe and fun summer!
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Old 08-07-2013, 02:32 PM   #2319
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I feel so alone on this thread.........

Hope everyone is having a safe and fun summer!

DS had his dentist appointment on July 26th. Cleaning went OK. He was fine right up until it was time to lay back on the table. Some struggling and crying but we got through it.

DS starts 5th grade on September 3rd. We knew he would be getting a new teacher but found out on the last day of 4th grade that his new teacher would be the teacher he had in kindergarten! Yippee!! The teacher is moving up to work with the older kids and I couldn't be more pleased. What was nice was the school's principal shared that awesome news with me on the last day of school so I wouldn't worry all summer. She knew I was concerned about it and she gave me the good news on the sly since it hadn't been announced yet to other people. Gotta love principals like that!

Hope everyone is well......
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Old 08-22-2013, 11:47 AM   #2320
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AARRGGHH!!!

Just got a text from an aide who works at DS's school. The teacher who was moving up to teach my son's 5th grade class accepted a job at another school district and won't be his teacher after all.

School starts in 6 days......

So now I have 6 days to get him used to the idea of having a different teacher - and we don't even know who that will be?? I'd been talking all summer about the teacher who was supposed to be in the room to get him ready for it and now she won't be there.

My guess is we'll be dealing with substitute teachers for awhile since it's such short notice to find a teacher for his room.

*drat*
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