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Old 06-29-2006, 01:51 PM   #81
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Hi, Fiona Canada Day is a Stat holiday over here Celebrating the birthday of Canada.

Wow sounds like J did a great job! I love it when our little guys perform and do well. Yeah! And the flapping love it Megan only does it when she is happy or excited.
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Old 06-29-2006, 03:37 PM   #82
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Quote:
Originally Posted by fiona
I so agree with you - my DH is way up there on the spectrum - just never realised it! Now even he says he is Aspie - trouble is - he sometimes uses it as an excuse for not doing stuff - I think its his age too! Down side is that his (DH) parents will not accept that J has it and his cousins are showing signs and both sons are 'eccentric' - that would be seen as a weakness and we don't have any weaknesses in HIS family - must be mine and my SIL genes! My mum is so accepting and reads about and helps and his are a pain - we haven't spoken to them in over 2 years because they will not adapt for J and I'm not willing to let my little one go into a war zone with them and have them shouting (particularly MIL) at him as he has a meltdown or they don't do things his way!
OMG, that is so funny, my DH uses it as an excuse a lot of times, too! And also like you, my in-laws would NEVER accept this, so we have not even mentioned it, except to my BIL's wife (DH's brother's wife.) She does accept and agree with it; gosh, she's known my DH longer than I have!

Hey themrs, my DH also remembers movies, also EVERY episode of Law&Order-- down to the last detail. He can tell you how many times he's seen it, too. Lots of stuff like that! My AS son pretty much has the photographic memory also.

It is so good to know there are others out there who really love their Aspies!
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Old 06-29-2006, 04:10 PM   #83
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Default Fragile X syndrome...

Does anyone out there have kids with Fragile X Syndrome??? Austism goes with it alot of the time so I can relate. I have 2 kids with FXS. This is a genetically passed disorder passed on from me to my kids through the X chromosome. ANYONE, ANYONE????
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Old 06-29-2006, 05:07 PM   #84
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Yeah for J! Sounds like he did great.
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Old 06-29-2006, 05:55 PM   #85
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Does anyone out there have kids with Fragile X Syndrome??? Austism goes with it alot of the time so I can relate. I have 2 kids with FXS. This is a genetically passed disorder passed on from me to my kids through the X chromosome. ANYONE, ANYONE????
What is that?
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Old 06-29-2006, 06:14 PM   #86
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Its a genetically passed disorder that affects the "x" chromosome that causes developmental delay, mental retardartion, speech delay, autistic characteristics or autism, behavioral disorders such as ADHD, OCD, and Sensory Integration Disorder. Boys are generally more severly affected because the girls have 2 "x"'s so one counteracts the fragile one so my daughter is less severe.
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Old 06-29-2006, 06:18 PM   #87
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Originally Posted by sexy stylist and stamper
Its a genetically passed disorder that affects the "x" chromosome that causes developmental delay, mental retardartion, speech delay, autistic characteristics or autism, behavioral disorders such as ADHD, OCD, and Sensory Integration Disorder. Boys are generally more severly affected because the girls have 2 "x"'s so one counteracts the fragile one so my daughter is less severe.
Oh, I hadn't heard of that. My son has the last 3.
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Old 06-30-2006, 06:19 AM   #88
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Default Autism Parenting

I want to introduce myself as a parent of two boys with ASD. My husband also has a diagnosis (gained after the kids were diagnosed as I noticed too many similarities) of Asperger's. My kids are older than most of the posters here. My oldest is 24 and my younger lad is 21.

There is definitely something genetic with our family. My maternal grandfather was diagnosed in the 1950's with OCD but Asperger's had not even been heard of at that time in Canada. I really believe he was an Aspie. In my husbands family Autism is far more obvious. Steve has a pair of second cousins that are both low functioning and we now have a total of three nephews diagnosed with Asperger's from two different families.

My oldest is CDD Autism or as my DH says worst case scenario autism and my other son is mid functioning.

I recognize many of the challenges talked about in this thread. I can say with age many symptoms moderate - they seldom disappear. I am never quite sure whether I am getting better at living with Autism or if my ASD family has improved significantly. A bit of both I think.

When thinking about social skills and how much improvement I see especially with my younger lad, I believe our decision to get him involved with Drama - dress up, playacting etc. has been of more value than traditional social skills lessons. I would encourage all to look into this option. If nothing else it is fun and can do no harm. For my husband most of his improvement in social skills and believe me there has been a significant improvement from when we were first married, has been from wanting to help the boys. In educating himself to help the lads he has educated himself and worked hard to challenge himself to be more social.

I will post again on this thread and please note I started a thread for post 21 Autism.

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Old 06-30-2006, 06:38 AM   #89
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I am a special ed assistant in a self contained classroom for students with autism. I have done this for 5 years and taken oodles of training and classes. i am on day 3 of a 3 day class right now that is by far the BEST information I have ever been taught. I am excited about going back into the classroom and applying what I have learned. We have a wonderful instructor right now who I admire tremendously. She has an adult brother with autism, she is an autism specialist with her masters degree. She has lived with it, worked with it for ever and is an amazing educator.
We have learned 1 thing that I love and that is nothing moves forward until we have calm. and pre-teaching calm....it is amazing I am so looking forward to being in the class and using these strategies.
Myhats off to all of you Moms because I may work with these kids 6 hours a day but that is nothing compared to living with them and raising them and loving them 24/7.
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Old 06-30-2006, 06:41 AM   #90
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Quote:
Originally Posted by sexy stylist and stamper
Does anyone out there have kids with Fragile X Syndrome??? Austism goes with it alot of the time so I can relate. I have 2 kids with FXS. This is a genetically passed disorder passed on from me to my kids through the X chromosome. ANYONE, ANYONE????
I have at least heard of it and my DD's girl scout leader's son had fragile X, more than just her son I think it was in the other 2 kids as well. I have not heard from this woman for years but I do know a little of what she was going through.
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Old 06-30-2006, 06:59 AM   #91
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Sandy, It will be great to hear more from a mom that has lived with it for much longer than most of the rest of us. I'm sure you will have lots of great support for us.

Dorinda, I can't wait to hear about some of the things you are learning. Unlike most of the others I have heard about, we get no special help for our kids. We sent them to an occupational therapist in January at the suggestion of my sons Kindergarten teacher and that is when we first heard of Sensory Itegragtion Disorder and Aspergers. We had just the 2 boys going once a week, but the insurance only pays 30 percent and by March we had racked up over 1200.00 in OT bills. We had to stop taking them. My neighbor has a boy that is exactly like my 4 year old and he gets all kids of special programs, social programs ect.... they get it all for free. We make just enough to not qualify for any help, but not enough to pay for it on our own. Any info you could share with me would be great!!
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Old 06-30-2006, 08:30 AM   #92
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Originally Posted by themrs
Sandy, It will be great to hear more from a mom that has lived with it for much longer than most of the rest of us. I'm sure you will have lots of great support for us.

Dorinda, I can't wait to hear about some of the things you are learning. Unlike most of the others I have heard about, we get no special help for our kids. We sent them to an occupational therapist in January at the suggestion of my sons Kindergarten teacher and that is when we first heard of Sensory Itegragtion Disorder and Aspergers. We had just the 2 boys going once a week, but the insurance only pays 30 percent and by March we had racked up over 1200.00 in OT bills. We had to stop taking them. My neighbor has a boy that is exactly like my 4 year old and he gets all kids of special programs, social programs ect.... they get it all for free. We make just enough to not qualify for any help, but not enough to pay for it on our own. Any info you could share with me would be great!!
I know how you feel with medical bills and therapy etc... I have no med. isu. right now, thanks God my kids havent been to sick this year but my son has been to speech therapy and we finally had to quit taking him cuz its so expensive and we dont qualify for any help either. Ive tried Medicaid, Medicade Disability, and Chip, We make to much.
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Old 06-30-2006, 12:43 PM   #93
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Sandy,
It's nice to hear from someone who's been at this for awhile.

Dorinda,
It's nice to have an educator's perspective.
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Old 06-30-2006, 12:50 PM   #94
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Quote:
Originally Posted by Dorinda
I am a special ed assistant in a self contained classroom for students with autism. I have done this for 5 years and taken oodles of training and classes. i am on day 3 of a 3 day class right now that is by far the BEST information I have ever been taught. I am excited about going back into the classroom and applying what I have learned. We have a wonderful instructor right now who I admire tremendously. She has an adult brother with autism, she is an autism specialist with her masters degree. She has lived with it, worked with it for ever and is an amazing educator.
We have learned 1 thing that I love and that is nothing moves forward until we have calm. and pre-teaching calm....it is amazing I am so looking forward to being in the class and using these strategies.
Myhats off to all of you Moms because I may work with these kids 6 hours a day but that is nothing compared to living with them and raising them and loving them 24/7.
I'd love to hear what kind of training this is. As a teacher and a momma with an Aspy, I NEED all the info I can get
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Old 06-30-2006, 01:03 PM   #95
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Hi, Dorinda, cant wait to hear what information you may have for us.

Hi guys just using a friends computer to check while we are away. Guess I just can't stay away for SCS such a great place.
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Old 06-30-2006, 01:08 PM   #96
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Jana & themrs,

I don't know if you are stateside, but if so your local school district may be able to provide some of the needed services (OT, speech, etc) for you. You might have to fight a little. Pm me if you have any questions.
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Old 06-30-2006, 03:50 PM   #97
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Originally Posted by themrs
Sandy, It will be great to hear more from a mom that has lived with it for much longer than most of the rest of us. I'm sure you will have lots of great support for us.

Dorinda, I can't wait to hear about some of the things you are learning. Unlike most of the others I have heard about, we get no special help for our kids. We sent them to an occupational therapist in January at the suggestion of my sons Kindergarten teacher and that is when we first heard of Sensory Itegragtion Disorder and Aspergers. We had just the 2 boys going once a week, but the insurance only pays 30 percent and by March we had racked up over 1200.00 in OT bills. We had to stop taking them. My neighbor has a boy that is exactly like my 4 year old and he gets all kids of special programs, social programs ect.... they get it all for free. We make just enough to not qualify for any help, but not enough to pay for it on our own. Any info you could share with me would be great!!
What state are you in? I'm just asking because once we received the offical autism diagnosis, in PA we were eligible for state assistance insurance for David and with the diagnosis they can not base it on your income. I'm really thankful for that because we would have made too much to qualify for the extra help but not enough to be able to afford all the special therapy he received. The state assistance insurance covered all speach, OT, DT and the period where we had an aid assisting him at daycare. Our regular insurance would not have covered anything. Please look into this to see if this is an option in your state. Good luck!
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Old 06-30-2006, 04:40 PM   #98
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What state are you in? I'm just asking because once we received the offical autism diagnosis, in PA we were eligible for state assistance insurance for David and with the diagnosis they can not base it on your income. I'm really thankful for that because we would have made too much to qualify for the extra help but not enough to be able to afford all the special therapy he received. The state assistance insurance covered all speach, OT, DT and the period where we had an aid assisting him at daycare. Our regular insurance would not have covered anything. Please look into this to see if this is an option in your state. Good luck!

We are in Minnestoa. We got the diagnosis from the OT, but I guess she can not give an "official" diagnosis. We sent Teegan to a Phycologist, but I felt he was worthless and a waste of time. We now have the kids on a 5 month waiting list for an appoitment at the Univerisy of Minnesota Autimsm clinic. They do a couple full days of testing with several different specialist. Once we have something from them we may have some more options... I'm really hoping that will be the case!
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Old 06-30-2006, 10:27 PM   #99
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Quote:
Originally Posted by themrs
Sandy, It will be great to hear more from a mom that has lived with it for much longer than most of the rest of us. I'm sure you will have lots of great support for us.

Dorinda, I can't wait to hear about some of the things you are learning. Unlike most of the others I have heard about, we get no special help for our kids. We sent them to an occupational therapist in January at the suggestion of my sons Kindergarten teacher and that is when we first heard of Sensory Itegragtion Disorder and Aspergers. We had just the 2 boys going once a week, but the insurance only pays 30 percent and by March we had racked up over 1200.00 in OT bills. We had to stop taking them. My neighbor has a boy that is exactly like my 4 year old and he gets all kids of special programs, social programs ect.... they get it all for free. We make just enough to not qualify for any help, but not enough to pay for it on our own. Any info you could share with me would be great!!
Do you have a medical diagnosis? Do you have an educational diagnosis? If not get them....this can lead to more services provided to you thru the school system, including OT. Check into it. Have the evaluations done byt the educators and a Dr.
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Old 06-30-2006, 10:28 PM   #100
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themrs
check with your school district about obtaining early intervention services and/or educational service district for educational diagnosis
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Old 07-01-2006, 09:45 AM   #101
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I don't even know where to begin....
Keelin, my 3 year old, is going to cause me to loose my mind. She will not go to bed at night anymore and was up unil aobut 11p last night, we had to wake her up early to take my Dh to the airport (2 1/2 hours round trip). So this probably was not a good start of the day for her. She wanted a jam sandwich, but I guess I didn't make it right and she screamed at me and threw it on the floor. I put her in a time out and she peed all over the floor (she does this on purpose as soon as she gets in her *naughty spot*) I was tired of hearing all her screaming - and just stressed anyway, so I spanked her. She is raging so bad that she is actually trying to bite her teeth through the skin on her leg and screming "I want my leg off!!" Then she runs wild slamming doors and just screming so bad that the neighbors must think she is being tortured and killed over here. She does this over everything, all day long. I may not have any official diagnosis for her, but I'm telling you this child is not normal and I don't know what to do!! I feel like just crying.
Does anyone else have kids that have meltdowns this bad?
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Old 07-01-2006, 10:18 AM   #102
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Themrs,
I'm so sorry you're having such a hard time. My friend's son is the same way. He has started taking some medication recently that has greatly improved his behavior. He only tantrums a couple of times a day now, and they are not nearly as bad.

As far as the sleeping goes, we have to give Caleb melatonin. It has helped immensely. He goes to sleep a lot more easily and usually sleeps through the night.

Good luck while your husband is away. DH is a MArine so I know how it is to be alone with the kids for extended periods. Not the most fun. Sometimes completely overwhelming. ((((HUGS))))
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Old 07-01-2006, 12:47 PM   #103
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Quote:
Originally Posted by themrs
I don't even know where to begin....
Keelin, my 3 year old, is going to cause me to loose my mind. She will not go to bed at night anymore and was up unil aobut 11p last night, we had to wake her up early to take my Dh to the airport (2 1/2 hours round trip). So this probably was not a good start of the day for her. She wanted a jam sandwich, but I guess I didn't make it right and she screamed at me and threw it on the floor. I put her in a time out and she peed all over the floor (she does this on purpose as soon as she gets in her *naughty spot*) I was tired of hearing all her screaming - and just stressed anyway, so I spanked her. She is raging so bad that she is actually trying to bite her teeth through the skin on her leg and screming "I want my leg off!!" Then she runs wild slamming doors and just screming so bad that the neighbors must think she is being tortured and killed over here. She does this over everything, all day long. I may not have any official diagnosis for her, but I'm telling you this child is not normal and I don't know what to do!! I feel like just crying.
Does anyone else have kids that have meltdowns this bad?

poor you - been there too - J is now 7 and with age and ability to communicate come less meltdowns! I have also resorted to smacking - sometimes I could see no other way - he was too strong to keep on the naughty spot and I was getting nowhere. Please hang in there - pm us if you want us - and know that things WILL get better - children have good and bad days too and as you said it was all too much from the beginning - one of my nurses that deals with J said that you have plateaus then it gets better and sometimes it will get worse for a bit sort of the two steps forward and one back, but always know people are there for you.
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Old 07-01-2006, 01:56 PM   #104
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OH my gosh. I feel so horrible for you. I've never had to deal with anything that bad but through the years there have been a few times that I have felt so frustrated and overwhelmed with Josh that I have cried pretty hard. Since we got him into ABA and out of the Resource exchanges playgroup for special needs children he has been practically perfect.
I hope and pray that you will get a diagnosis and help with her soon.

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I don't even know where to begin....
Keelin, my 3 year old, is going to cause me to loose my mind. She will not go to bed at night anymore and was up unil aobut 11p last night, we had to wake her up early to take my Dh to the airport (2 1/2 hours round trip). So this probably was not a good start of the day for her. She wanted a jam sandwich, but I guess I didn't make it right and she screamed at me and threw it on the floor. I put her in a time out and she peed all over the floor (she does this on purpose as soon as she gets in her *naughty spot*) I was tired of hearing all her screaming - and just stressed anyway, so I spanked her. She is raging so bad that she is actually trying to bite her teeth through the skin on her leg and screming "I want my leg off!!" Then she runs wild slamming doors and just screming so bad that the neighbors must think she is being tortured and killed over here. She does this over everything, all day long. I may not have any official diagnosis for her, but I'm telling you this child is not normal and I don't know what to do!! I feel like just crying.
Does anyone else have kids that have meltdowns this bad?
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Old 07-01-2006, 02:16 PM   #105
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thanks to all of you! I'm tired of having a bad day, so I think I will load up the kids and go get some ice cream and rootbeer, make some floats and have a bit of fun.
I should be the pro at dealing with the meltdowns by now. Gavin was the king of those, but has really come a long way in the last year and controls himself very well now. I worked really hard with him and maybe I just don't have the energy to do it again so soon. It just freaked me out that she was trying to chew her leg off. Gavin never really tried to hurt himself and I worry if this is something that will be a big issue for her.
Anyway...I'm loving this thread right now and am so looking forward to getting to know all of you better.....anyone want some rootbeer floats?
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Old 07-01-2006, 03:05 PM   #106
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You are an AMAZING women!! That would really freak me out too. I'm going to send an e-mail to my sons' former aBA therapist. She is pretty knowledgable and might have some advice for you. Enjoy those rootbeer floats.

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Originally Posted by themrs
thanks to all of you! I'm tired of having a bad day, so I think I will load up the kids and go get some ice cream and rootbeer, make some floats and have a bit of fun.
I should be the pro at dealing with the meltdowns by now. Gavin was the king of those, but has really come a long way in the last year and controls himself very well now. I worked really hard with him and maybe I just don't have the energy to do it again so soon. It just freaked me out that she was trying to chew her leg off. Gavin never really tried to hurt himself and I worry if this is something that will be a big issue for her.
Anyway...I'm loving this thread right now and am so looking forward to getting to know all of you better.....anyone want some rootbeer floats?
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Old 07-01-2006, 03:22 PM   #107
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Hi everyone my name is Linda and my son Tobi was diagnosed with High Functioning Autism and sensory intergration disorder just before his 2nd birthday.. He started preschool in February and we are working with various therapist.. I look forward to being a part of this group..

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Old 07-01-2006, 03:47 PM   #108
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Themrs, hope you enjoy your floats.

Welcome, Linda.
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Old 07-02-2006, 08:56 AM   #109
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hi Linda! Glad to have you here.

Laura, is the Melatonin just an OTC type of thing? Is There a special childrens dose? Is it something that they can begin to depend on or do you think I could just try it during the summer when they seem to have the worst time sleeping?? It sounds like a good option, I might like to try it.
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Old 07-02-2006, 10:17 AM   #110
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Quote:
Originally Posted by themrs
hi Linda! Glad to have you here.

Laura, is the Melatonin just an OTC type of thing? Is There a special childrens dose? Is it something that they can begin to depend on or do you think I could just try it during the summer when they seem to have the worst time sleeping?? It sounds like a good option, I might like to try it.
It's OTC and found normally with the vitamins and suppliments. I know that it comes in pill and some places also have a liquid form. DS dr. told me he could have up to 8 mg of it. I get it in 3 mg pill form and he takes two pills every night, about 30 mins before lights out. I started him with one pill as a base line and then upped it by half a pill until we found the level best for him. Getting him to fall asleep was an issue for a long time, now most nights he's out shortly after he gets in bed! He's still up early, but that is getting better now that we put up room darkening shades again.
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Old 07-02-2006, 12:05 PM   #111
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Caleb takes an OTC lozenge. He just chews it up. Before I found he'd take the lozenges, I had capsules that I would open and stick in a bite of ice cream. I told him to lick the spoon clean. He gets 4mg. His ped recommended it. He still wakes up at 3 am occasionally, but he goes to sleep so much easier. He used to stay up in his room until 11 or 12 most nights. Then he would be up at 4 am ready to party. Now he is asleep in less than 20 minutes, and generally sleeps 8-10 hours. He is just so much better rested in general. As far as dependency goes, I really don't know. Caleb has only been taking it for a couple months.
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Old 07-02-2006, 12:13 PM   #112
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One more thing themrs. You can contact your local school district and ask to have your kids assessed. Tell them about your concerns. Kids 3 & up should qualify for services. Go by the special ed office with a written, dated request. Keep a copy for yourself. They have 60 days to assess and write an Individualized Education Plan (IEP).
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Old 07-03-2006, 08:06 AM   #113
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Welcome Linda!

Wow its has been a busy weekend, I am so glad you are able to help one another stateside, over here in Canada our services are all government funded unless they are experimental. they paid for the EIBI and RDI program they has also covered all the speech, school does the OT. We also receive 6,000 a year for any programs we wish to put them in. They pay regardless of income. Our wait time here is pretty minimal for most things.
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Old 07-03-2006, 08:24 AM   #114
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From what I've heard it is only in certain provinces such as Alberta. From what I can see here in Quebec there isn't much offered.

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Welcome Linda!

Wow its has been a busy weekend, I am so glad you are able to help one another stateside, over here in Canada our services are all government funded unless they are experimental. they paid for the EIBI and RDI program they has also covered all the speech, school does the OT. We also receive 6,000 a year for any programs we wish to put them in. They pay regardless of income. Our wait time here is pretty minimal for most things.
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Old 07-03-2006, 08:28 AM   #115
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I'm in BC and the last 5 or 6 years have been huge in the autism movement, Alberta has had services for sometime I also thought Ontario had great services as well.
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Old 07-03-2006, 08:38 AM   #116
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I haven't had a chance or reason to check into the other provinces. I just know that here in Quebec the services are lousy. It's possible that we will be living in Alberta next yer though so I am thankful to hear that thye have great services.

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I'm in BC and the last 5 or 6 years have been huge in the autism movement, Alberta has had services for sometime I also thought Ontario had great services as well.
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Old 07-03-2006, 12:48 PM   #117
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Things are certainly different in BC than here in Ontario. 6000.00 per year sounds wonderful. Not that I don't get that for Alex - the group home costs a heck of a lot more than that. But for Kyle I had to fight for 3000.00 per year. Even though he had a IEP they tried cutting the service back from what it said on paper. For many this is successful but I am a lass who took advocacy courses and knew just how and who to contact so we always pretty much got what we needed just never without a fight. The government here has pretty sneaky ways of cutting back in fact what the say they deliver. Age limits, time limits, it takes forever to appeal, paperwork galore, etc. They are very creative indeed.

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Old 07-03-2006, 12:50 PM   #118
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BTW after 21 the services in Ontario are different. I now have Kyle on a disability pension. He gets 730.00 per month. Because he still lives on home that is the maximun entitlement it goes up to 960.00 if he moves out of our home.

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Old 07-03-2006, 12:53 PM   #119
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Hello everyone...I just found this topic and I am so happy to know that there are many others right here on SCS that know all about the joys and frustrations of having an ASD child. We are fairly new to all of this, but are learning so much as we go.

Our son was formally diagnosed with Aspergers this February at the age of 5 almost 6. We paid to have him evaluated at an Autism Clinic here. The school was beginning to go through their slow process of going through a SAT team, etc, but they would NOT formally evaluate him even though we requested they do so several times. Because they weren't moving as fast as we thought they should we decided to do something ourselves and looking back we are so glad we did. After receiving a medical diagnosis the school proceeded to do their evaluations of our son. He received an IEP at school in early April. While not a lot could be done since we were nearing the end of school, we felt relieved, that at long last we had set things up for him to begin receiving services. At his school he could only receive OT if he was "identified"...and that made us crazy (and his teacher too) because we all KNEW he definitely needed OT.

He is a very bright, high functioning child. He spoke VERY early and VERY clearly. He was reading environmental print at 2 and books at 3 1/2. We were amazed, but didn't really think much about it. I did worry a bit about his social skills and large/fine motor skills during play group, but was always reassured that he was probably just catching up in those areas since he was so strong in his verbal skills. He could out talk all the other kids his age...he knew his colors, numbers, etc. way before they did. We all just thought that they couldn't all relate because he was talking "above" their heads...and that eventually the playing field would level and all would be ok. We knew nothing about Aspergers or for that matter an Autism Spectrum. I have a El. Educ. degree and had worked as a Special Ed. Aide for several years before having my son. I worked with a young boy with Autism but he was nothing like my son. I remember thinking so many times the past few years that our son had "autistic" qualities, but thinking that he didn't have "autism" because he could speak, read, had a high IQ, etc. Wow...we have learned SO MUCH the past year and a half.

I read in another post that someone said they wouldn't want their child any other way...because then their child wouldn't be the child they love so very much. I couldn't agree more!!!! Why change these beautiful, smart, funny, quirky kids...they have so many "gifts" that the "neurotypicals" don't and never will. We are so lucky in so many ways to have them for our children.

After saying that...please don't think every day and minute is easy for us. It MOST certainly is NOT. We have our moments here too...many of them. We have just come out of a very difficult year of finding the right doctors, convincing school officials to get him the services he needs, all the while dealing with him and his frustrations. We have shed many a tear and tried so hard not to alienate people at school. We really believe in working together with the school to help our son. We don't have all the answers and desperately wanted to work WITH the school. In a "perfect" world this would happen, but believe me...it has not been the case. It costs the school district money and time to work with our son...or any child with special needs and they will do a lot of things to slow the process or delay providing services. I can say that it would be great to always do the "honey thing" but it truly, truly does not always work. IMHO...and in our experiences we have had to push and then push some more to get to where we are today. I hope that we haven't caused damage in relationships at school, but it is a two way street. We never set out to do that...if it has happened at the expense of getting our son what he needs...then that is the way it has to be. It is unfortunate, but true. Like an earlier poster said, we are not out to "make friends". Don't get me wrong...we are not the our way or the highway kind of people at all. Far from it....we have always been and would much prefer to be the kind of people who don't rock the boat. This has been a very hard year for us to come out of our "shells" and rock that boat some for our son. He is so worth it though. We wouldn't change a thing.

So...now that I have rambled and rambled....I will end this post. I hope that it is somewhat readable and not too confusing. I am looking forward to learning more about you all and will check in frequently. Thanks for starting this thread. No one can understand our situations as well as we do. I look forward to offering whatever support I can and hopefully receiving some as we go too.

Amy
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Old 07-03-2006, 02:49 PM   #120
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Hi and welcome Amy!

Wow Sandy, I guess that I am very fortunate to live in BC, I was under the impression Ontario had lots to offer in the field of autism, it has not always been easy here but the last few years have shown large growth in programs for kids with ASD. The 6,000 we receive is called autism funding if your child is under six you can collect 20,000 for at home services like EIBI, ABA, etc if they are above six you receive the 6,000 for supplementry services such as extra speech, OT, swimming, music therapy or any other approved therapy.
What services are available to you in Ontario?

Just wandering our school provides adapted swimming, speech, ot, fulltime aides and the RDI program what do other schools provide?
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