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Old 07-01-2007, 08:17 PM   #881
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He pulls the wheels off all his cars. :
OHHHHHHH yes!
DS loves trains, cars, and airplanes with a passion. However, all of the vehicles that have tires that can be removed are removed. That is the first thing he does!!!
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Old 07-07-2007, 10:15 AM   #882
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My sons the exact same way.
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Old 07-07-2007, 11:07 AM   #883
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My son has dinged up most of our baseboards by running cars into them over and over. Most of the rounded corners are dinged from him running around or running things into them.

In our other house, we had someone over painting and DS ran right into one of the corners, banging his head on it, cracking the drywall and exposing the metal strip inside. DS just walked away, no crying, nothing. The painter stood there totally stunned and said he'd never seen anything like that and couldn't believe he wasn't even crying!

There was a little hole in the drywall behind the kitchen door and I kept patching it with a little drywall mud, but never got around to repainting it because DS just couldn't leave it alone. He kept picking at it and slamming the door into it to see what would happen.

We had a rocker recliner that I finally gave away because DS kept spinning it around and ramming it into the wall, which is now cracked.
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Old 07-07-2007, 03:11 PM   #884
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Part of learning how to cope with the sensory issues is being exposed to them, but in small doses so that you can increase your tolerance over time. I'm thinking outloud here, but what if you were to say to your DS "We're going to read a story now, but you only have to listen for 5 minutes". See if he can tolerate 5 minutes of story time and gradually increase that time limit (if he can handle it).

He might be telling you that it's the story that is making him upset, but it could also be all of the visual stimulation around the room, sitting on the hard floor to listen to the story, kids sitting too close to him, the scratchy rug that he's sitting on....you name it. All of that may be overloading him!

I agree with Ann that an OT is necessary to help him. There may be exercises that an OT can do before story time that will help him tolerate story time better. It may be deep massage. It may be wrapping himself up in a blanket. It may be sitting quietly in a corner or bouncing on a trampoline.

The other thing to consider is a soft cushion for his chair or a pillow for the floor. That can be helpful.

A therapeutic listening program may also help. I would ask the speech therapist about that.

It's not easy, but if he can get therapy early on, he will be so much better off as he grows older. Hang in there!!!

Those are great ideas. Thanks! I think I will try some relaxation techniques to calm him down before a story that may frighten him - we may have a better chance of getting further with the stories.

We are currently on a wait list for OT. His name came up in Jan, but we had to cancel that appointment because we got a specialist appointment the same week, but on the other side of the country. We had been told he was dying (wrong diagnosis, but SID was the exacerbating problem), so we jumped at the opportunity to see the specialist. We are now waiting again for his name to come back to the top of the wait list again.

He was in OT before we moved across the country, but he now has to be re-evaluated again in this province. He's been out of therapy for 3 years now because when we first moved the OT had worked so well with him that he was just below age-level. We had to wait for him to get worse again, to try again.
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Old 07-07-2007, 04:09 PM   #885
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We had been told he was dying (wrong diagnosis, but SID was the exacerbating problem), so we jumped at the opportunity to see the specialist.
Oh my gosh! That is HORRIBLE! No wonder you are so angry!!! I really hope you find the RIGHT answers to your son's needs.
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Old 07-19-2007, 03:08 PM   #886
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I hope I do not offend anyone here but if you didnt already know american express is doing a contest to see which members project is worthy of $5 million dollars. A woman from my town is a finalist and her project: A cure for Autism ; R special kids is in the top 50 so please if you can let everyone know about membersproject.com and go vote for the autism research...ok thanks all, again I hope this is ok that I posted here.
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Old 07-19-2007, 03:15 PM   #887
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Thanks Circusgal. I'm going to go check it out.
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Old 07-26-2007, 09:31 PM   #888
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We just found a great way for my 5yo ds to keep in touch with his grandparents!!!!

My parents live 1100 miles away from us, and luckily we are able to see one another about 3-4 times a year. My mom loves to talk to my son on the phone, but it's difficult because he just gets wild and silly. Once in awhile he will calm down a little bit and talk to her for a few minutes, but then he gets silly again.

We were just at their house to visit, and he barely said hello when dh called (he stayed home). That kind of made my mom feel better knowing that he was the same way with his own Daddy, because she kind of felt that he didn't care to speak to her.

We now think that he was just having a hard time being able to see her, but not hear her.

WELL she got the awesome idea for us to get webcams and have video calling!

We finally got it set up and tried it for the first time tonight.
IT WAS WONDERFUL!!!!!
DS loved being able to talk right to Grandma and interact with her. He stayed engaged for about 20-30 minutes. We used Windows Live Messenger for the video calling, and they were able to draw little pictures and send them to one another, play little animated things on the screen, etc. It was so much fun!

We are excited about DS being able to talk to his cousin who visits Grandma at least once a month. The cousin loves to talk on the phone, but DS never will talk to him, although he adores him.
Gotta love technology!!!!!
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Old 07-27-2007, 04:20 AM   #889
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Jana,
That's awesome! My parents gave me a gift certificate to get a webcam about 5 months ago and I have yet to buy it because I just thought it was a hassle. Now you've convinced me, and my parents will be so happy when I finally buy it and install it! I'm glad to hear of your success.
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Old 07-27-2007, 04:44 AM   #890
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Be prepared, because it's easy to set up (mine was--Logitech Fusion) but getting the Video Call program and all that set up and working correctly did take a little doing. However, it was totally worth it for my son to be able to communicate with his long distance grandparents. It was like we were just in the next room!!!
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Old 07-29-2007, 06:17 AM   #891
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Jana,
Thanks for the wonderful idea on the webcam. My son, who lives in Florida, got divorced last year and his son now lives in Wisconsin during the school year.
Once AJ gets to Wisconsin, my son loses much of his contact with his son. The divorce has been difficult and my son doesn't get pictures of AJ so this would solve that as well. I hadn't thought of AJ not talking well on the phone because of the lack of visual, but it makes sense.
I passed this tip on to my son and he is delighted with the idea. I may get a webcam as well so that I can interact with my grandson.
I wanted to share a funny telephone story. I called my son last weekend and AJ picked up. Matt must have my number associated with a song because AJ picked up the phone and said, "Hi Grandma!".
I said, "Hi AJ! Can I speak to your daddy?"
AJ said, "Daddy's not here", and hung up the phone.
Well AJ is only 5 years old and I knew that my son would not leave him alone, so I called back and we repeated the same conversation with the same result.
I was dumbfounded. Envisioning my son unconscious on the floor and AJ watching TV over his body, do I just assume AJ is okay or do I call the police or do I keep calling until I can say the right words that AJ will respond to and tell me where his Dad is?
So I keep calling and keep getting hung up on by AJ despite my rephrasing my conversation. Sometimes I keep him on the phone for an entire 30 seconds before he hangs up.
FINALLY my son answers, totally clueless as to what has been going on between me and his son. He was outside talking to a neighbor. I swear I needed a drink. LOL!
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Old 08-02-2007, 10:21 AM   #892
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I just wanted to jump in here and thank Muffincards (?) hope I got that right for this link

http://www.generationrescue.org/biomedical.html

It's a very similiar to what we are doing with my son for his allergies.

I wonder how many of your autistic children also have allergies?

Also...wow...you ladies are strong!
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Old 08-02-2007, 07:55 PM   #893
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I was wondering if I could join this thread for some support. I have 3 girls ages 3, 2, and 7 months. My 2 year old has albinism(lack of pigment in hair, skin, and eyes) severe food allergies, and has been diagnosed with Sensory processing dysfunction. Lately things have been getting worse and there are days wehre I feel alone, not even DH can understand what I am going through b/c I am with her all day long and he is only with her a portion of the day.

She doesn't like to be touched or go into new situations. She will tantrum over things and it is physically hard to control her. At walmart the other night she wanted water but couldn't communicate that to us so she broke down and we couldn't get her to stop screaming. In the car she will scream and yell and get out of control. She will hits her older sister over the head when she wants her to do something, I guess this is how she is trying to communicate it????

She hates wearing pants and diapers so must wear a onsie or footy pjs with zippers most of the time so she wont undress. She hates having her hands messy and will freak out if htey aren't clean. THere is more but my brain isn't working right now.

We recently got her a weighted lap blanket and are seeing signs of improvment!!! IF we place it on her lap when we are in teh car she no longer screams! The other day we went on a playdate and she was not comfortable and had a tantrum so I picked her up and placed the blanket on her lap and held her and she calmed down. I have also noticed that if she notices she isn't doing well she will ask for her blanket! We ordered her a vest and are waiting for it to come!

I know she doesn't have autism but I feel alone and I feel like we go through some of the same things as what you all go through. It is ok if I post here? I understand i fyou want to keep it just to those with autism.

Thanks for listening to me ramble. The past week has been hard on me and I need some support from others who know what it is like
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Old 08-03-2007, 03:42 AM   #894
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I was wondering if I could join this thread for some support. I have 3 girls ages 3, 2, and 7 months. My 2 year old has albinism(lack of pigment in hair, skin, and eyes) severe food allergies, and has been diagnosed with Sensory processing dysfunction. Lately things have been getting worse and there are days wehre I feel alone, not even DH can understand what I am going through b/c I am with her all day long and he is only with her a portion of the day.

She doesn't like to be touched or go into new situations. She will tantrum over things and it is physically hard to control her. At walmart the other night she wanted water but couldn't communicate that to us so she broke down and we couldn't get her to stop screaming. In the car she will scream and yell and get out of control. She will hits her older sister over the head when she wants her to do something, I guess this is how she is trying to communicate it????

She hates wearing pants and diapers so must wear a onsie or footy pjs with zippers most of the time so she wont undress. She hates having her hands messy and will freak out if htey aren't clean. THere is more but my brain isn't working right now.

We recently got her a weighted lap blanket and are seeing signs of improvment!!! IF we place it on her lap when we are in teh car she no longer screams! The other day we went on a playdate and she was not comfortable and had a tantrum so I picked her up and placed the blanket on her lap and held her and she calmed down. I have also noticed that if she notices she isn't doing well she will ask for her blanket! We ordered her a vest and are waiting for it to come!

I know she doesn't have autism but I feel alone and I feel like we go through some of the same things as what you all go through. It is ok if I post here? I understand i fyou want to keep it just to those with autism.

Thanks for listening to me ramble. The past week has been hard on me and I need some support from others who know what it is like
Casey you are most welcome here! There are lots of our kids who have sensory problems too! We used the weighted vest and blanket for my son too and what a difference! You should definitely check out a good occupational therapist who is certified in sensory integration. We did that with my son soon after he was diagnosed and what an amazing difference! I don't know what kind of supports you have where you live, but it is definitely worth the effort to find a really good OT.
Our son is older now and is able to cope with a lot of the sensory issues now, but I remember what it was like-you are not alone!!!
Please feel free to PM me is you want to chat!
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Old 08-03-2007, 07:04 PM   #895
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Ok, I have a question to ask...Does your child have a larger head? I just joined a Yahoo group for home-schooling mothers of aspies. One of the posts there pointed to this article. My son measured body 10% on the chart and head 50% at his last check-up. I was just wondering how this lines up with your child?
Hi, I know that this was written quite some time ago, but I wanted to say that when I was pregnant with my son, (DX at 2 1/2 w/autism, now 6 1/2). his head/abdomin ratio was always off. Big head, small waist!
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Old 08-03-2007, 07:09 PM   #896
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Thank you to abmurray, I now know this thread exixts.
I have a 6 yo autistic son. I'm sure there is some ADD in there, too. He is soon to go into 1st grade. His shared aid was taken away (given to someone else) and due to severe budget cuts in our school system, he must go it alone. I am considering medication to help him focus. Has any one tried this? Any suggestions? Thanks, Debbie
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Old 08-04-2007, 06:47 AM   #897
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I just wanted to jump in here and thank Muffincards (?) hope I got that right for this link

http://www.generationrescue.org/biomedical.html

It's a very similiar to what we are doing with my son for his allergies.

I wonder how many of your autistic children also have allergies?

Also...wow...you ladies are strong!
Hi Bluebear,
Yes, it probably was me who gave out this link. Interesting---so you are treating your son's allergies with diet and supplements? If you don't mind my asking, what exactly are you doing in terms of supplements. I'm sure my kids have allergies, but their test results always come back negative and low for the "typical" stuff --- milk, peanuts, dog hair, etc. However, my 7yo has dry, dry skin and rashes (eczema?) a lot for no apparent reason. I could go on and on.

For those who are interested in a little background info:

Apparently there is a lot of controversy in the autism world right now because Katie Wright (whose parents founded Autism Speaks--now the largest autism organization in the world) and her parents are at odds as to the causes of autism. Katie believes in the environmental toxins/vaccine "poisoning" and wants Autism Speaks to do more in that area of research. Her parents are funding more of the genetic type of research. Some people believe that Katie's "mentor" is JB Handley who founded Generation Rescue. So there is a lot of controversy surrounding Generation Rescue as well.

I guess it just goes to show that the hardest thing about autism is that there is no magic bullet. No one has the answers. It's up to us as parents to find what best works for our kids ---- and that can be extremely frustrating and full of guilt.
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Old 08-04-2007, 06:54 AM   #898
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Hi CaseyK:
Welcome to the group! You are not alone!!!!!!

I just wanted to write to say that, believe it or not, but it does get better. My son could not tolerate other people crying and screaming. He would start to breakdown if other kids were crying. So you can imagine how hard it was for him to be in a classroom with other 3 yr olds with autism and everyone is having their little meltdowns here and there. Eventually, he had to get used to it. He still has auditory sensory issues (ie. ball games, fireworks, concerts, etc. are really scary for him and for us!), but not as bad as before. BTW, my son is now 5.5 yrs old.

I also wanted to ask --- and I read it here in this thread I think --- if the carseat is bothering her and that's why she is screaming in the car? If she cannot tolerate diapers, she must hate being constrained by the seatbelt. I forget the advice that others gave here, but I'm pretty sure I read it in this thread.

And I'm sure part of it too is not being able to communicate how she's feeling so screaming and crying and breaking down are just the easiest way to say "I don't feel well. Help me!"

It is tough. No question. But it does get better (not perfect/not 100%, but better than now) with therapy and school and I hope that you find (or have) a good OT who can help you.

HUGS!
Catherine
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Old 08-04-2007, 07:06 AM   #899
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Thank you to abmurray, I now know this thread exixts.
I have a 6 yo autistic son. I'm sure there is some ADD in there, too. He is soon to go into 1st grade. His shared aid was taken away (given to someone else) and due to severe budget cuts in our school system, he must go it alone. I am considering medication to help him focus. Has any one tried this? Any suggestions? Thanks, Debbie
Debbie,
I am so sorry that your son doesn't have an aide. This is really bothering me. I truly believe that your son has rights and budget cuts are not the answer. Why can't the school keep your son and the other child in the same classroom so they can continue to share the same aide? Are they at different levels academically, functionally?

My 5.5yo is going into mainstream K come September. We were told he would not have an aide. I was furious. He is high functioning, but he cannot handle a classroom of 20+ kids with the noise, the stuff hanging from the walls/windows, etc. He will not be able to follow directions and will not be able to focus. I laid out these arguments in a letter to the school district. While I didn't get an aide per se, I did get someone who will come in for 1 hour a day for the first 6 weeks to get him acclimated. Then, we'll meet after 6 weeks to see if an aide is warranted.

Also, I plan on speaking to the K teacher. It's not fair to expect her to spend all of her time with my son when other students will need her attention as well. I am going to tell her that if she is overwhelmed, she will need to request an aide too so it's not just coming from me.

I am not against medication, but I feel really badly that you feel you need to medicate your son just because the school district is not doing what they need to do. My 7 yr old is ADHD. We definitely considered meds, but once he got the right help in school, we put meds on the back burner. If he starts to fumble or lose confidence or really fall behind his peers, we'll consider it again.

Anyway, I just feel so badly for you. There are definitely websites out there that can give you the appropriate language to use if you feel you need to fight this. Getting an advocate or attorney is costly to you, but may also be an option because then the school knows you mean business.

Sorry, not trying to be negative...just realistic.
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Old 08-04-2007, 07:17 AM   #900
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Okay...sorry in advance, but I'm getting on my high horse. The Individuals with Disabilities Education Act (IDEA) says that the child must be educated in the least restrictive environment. Here is a quote from the Learning Disabilities Association (the highlights are mine):

"Least Restrictive Environment (LRE) — IDEA guarantees that a child with a disability will receive a free appropriate public education in the least restrictive environment (LRE) appropriate. This principle reflects IDEA’s strong preference for educating students with disabilities in general education classes with the access to general education curriculum. Placement in the general education classroom is the first placement option the IEP team must consider.

When considering placement in the general education classroom, the team is required to explore the range of modifications and supplementary aids and services that are needed to ensure that the student can receive a satisfactory education in the general education classroom. If the IEP team determines that the student can be appropriately educated in the general education classroom using modifications/supplementary aids and services, this is the LRE for that particular student.

However, the IEP team may determine that the student cannot be educated satisfactorily in the general classroom, even with the provision of modifications and supplementary aids and services. The team must then consider other placements outside of the general classroom in order to provide FAPE for the child. The range of such placements that each school system is required to have available is commonly referred to as the “continuum of alternative placements.” Thus, like all other components of a student's special education, the LRE must be determined for each student based upon that child’s individual needs."

Debbie: do you believe that your child can receive a satisfactory education without an aide. Satisfactory? Not the best--you're not asking for the best. You're asking for the most appropriate placement and learning environment for your child.

Okay, I'm getting off my high horse now.
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Old 08-04-2007, 12:32 PM   #901
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Interesting. In the peanut allergy world we shoot for a 504 plan to ensure FAPE. I'm not there yet....my son turns 4 in October but he will probably start K in the fall of 08 - even though he will only be 4.

Ok...in regard to allergies. He has a life threatening peanut allergy. We do not treat that. Nothing we are doing will treat that. We avoid all sources of peanut period. Epi pens are always with him. That is the only life threatening food allergy (IgE response) that he has that we know about.

I had his IgG anitbody response tested by a Natropath due to his constant itching. We had sort of lived with it....until he got a fever for a week and totally stopped itching. He also wasn't eating...so I equated the not eating with no itching. So we had the ELISA pannel run by US BioTek. He tested highly reactive to all wheat/gluten all dairy including goat, soy, egg, and more.

So for two months we are egg free, soy free, dairy free, gluten free, AND peanut free. Peanut trumps everything else.

We are giving him fish oil, glutamine and probiotics daily as gut repair. And Calcium and magnesium supplements to make sure he gets enough calcium and honestly I am not sure why the mag.

We are also eliminating toxins....ie plastic cups, laundry detergent, cleaning products, etc. We eat whole foods. Almost everything on that list...except the metal reduction/chelation. I am not real excited about upcoming vaccines at 4yo and will probably delay or modify that schedule.

In two months....that's 5.5 weeks from now we'll go back to the naturopath and hopefully we can reintroduce some foods into his diet. Her theory is the "leaky gut syndrome" and that was caused by the early introduction of foods and the use of antiboitcs. By removing these foods and repairing his gut his system will hopefully heal.

I have run all that we are doing past our pediatrician and she hasn't sent the men in white coats to get me. She did make some changes to the plan and goal amount of calcium. But she is supportive.

I think these things...autism, allergies, asthma, eczema are all related. My son is reading, writing, doing addition/subraction/multiplication tables (ok so I let him watch Schoolhouse Rocks on youtube) ...is incredibly verbal...has very high fine motor skills...and sometimes has some OCD tendancies...he is in no way autistic but I kind of see it as the other side of the same coin kind of thing. He has always lined up everything. Everthing is in order. If he is stressed - really stressed he will have an ocd freak out melt down. He doesn't do well with transitions. He needs to know whats next. he gets caught in loops.
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Old 08-04-2007, 02:01 PM   #902
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Debbie,
I am so sorry that your son doesn't have an aide. This is really bothering me. I truly believe that your son has rights and budget cuts are not the answer. Why can't the school keep your son and the other child in the same classroom so they can continue to share the same aide? Are they at different levels academically, functionally?

My 5.5yo is going into mainstream K come September. We were told he would not have an aide. I was furious. He is high functioning, but he cannot handle a classroom of 20+ kids with the noise, the stuff hanging from the walls/windows, etc. He will not be able to follow directions and will not be able to focus. I laid out these arguments in a letter to the school district. While I didn't get an aide per se, I did get someone who will come in for 1 hour a day for the first 6 weeks to get him acclimated. Then, we'll meet after 6 weeks to see if an aide is warranted.

Also, I plan on speaking to the K teacher. It's not fair to expect her to spend all of her time with my son when other students will need her attention as well. I am going to tell her that if she is overwhelmed, she will need to request an aide too so it's not just coming from me.

I am not against medication, but I feel really badly that you feel you need to medicate your son just because the school district is not doing what they need to do. My 7 yr old is ADHD. We definitely considered meds, but once he got the right help in school, we put meds on the back burner. If he starts to fumble or lose confidence or really fall behind his peers, we'll consider it again.

Anyway, I just feel so badly for you. There are definitely websites out there that can give you the appropriate language to use if you feel you need to fight this. Getting an advocate or attorney is costly to you, but may also be an option because then the school knows you mean business.

Sorry, not trying to be negative...just realistic.
Catherine, Thanks for your input. I appreciate it. He was supposed to share an aide with another boy, but they put the aide with another child in K (who in all honesty needs one more) He will be pulled out a couple hours a day with an ESE teacher for small group. I am going in with the attitude of "this better work, or else". He was in the same situation in K as your son. It wasn't working and teacher wasn't honest with me. The ESE teacher came to me and I pulled him out stuck him in the co-teach K class they had going on (several diabled children, as well as normal functioning, plus K teacher, ESE teacher and an aide) This worked well, but again, budgets, they will not be doing this sort of thing anymore. All-Inclusive!
ANyway, he is very distracted and I KNOW he won't learn like that. (too busy with what everyone else is doing), So I was considering ADD meds. Not excited about it all, to say the least. Thanks again, I think I am going to have a busy couple of months in 1st grade!
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Old 08-04-2007, 06:41 PM   #903
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This discussion is helping me feel better about the decision to put DS in a self contained class for the beginning of K. He will mainstream out as much as possible when he is ready, but I just feel strongly that he will get the best education by being self contained in a class of 8 or less to start. It's already going to be a HUGE adjustment for him because he's been with the same teachers for 2 years in preK. The class he will be in for K has all ages.
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Old 08-05-2007, 07:33 AM   #904
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My DS cried and tantrum everyday the 1st couple weeks of K (he was in the same PreK for 2 1/2 yrs--Dec baby). On the 1st day of school, I had to literally leave him in the class rolling on the floor kicking and screaming! I went and got the Speech Path who he knows and she helped calm him down. We had an aide come in for the 1st 1/2 hour every morning for his transition. Finally, after we had open house, he settled in and no more tantrums. I wish I would have put him in the co-teach class from the beginning. (they kept assuring me he'd be OK mainstreamed)
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Old 08-05-2007, 05:43 PM   #905
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So I have a quick question and I am sure I may get several opinions. Do you all consider Sensory Processing Dysfunction part of ASD? I keep getting conflicting information so was curious what others thought here.
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Old 08-05-2007, 06:23 PM   #906
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So I have a quick question and I am sure I may get several opinions. Do you all consider Sensory Processing Dysfunction part of ASD? I keep getting conflicting information so was curious what others thought here.
Yes and no depending on your question:

If you are asking if your child is autistic because she has Sensory Processing Dysfunction, the answer is no. If your child's only issue is Sensory Processing Dysfunction, that does not mean that your child is on the autistic spectrum. There are specific criteria for being on the spectrum including sensory issues, social and communication impairments and other specific criteria.

If you are asking if Sensory Proc Dysfunction is a part of autism, the answer is yes. Sensory Processing Dysfunction is always a part of a diagnosis of PDD/Autism.

Does that make sense?
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Old 08-06-2007, 05:33 AM   #907
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So I have a quick question and I am sure I may get several opinions. Do you all consider Sensory Processing Dysfunction part of ASD? I keep getting conflicting information so was curious what others thought here.
I definitely think that is a child has autism they have sensory issues! I don't think I have heard of any child with autism that doesn't have at least one sensory issue. I do know that like Catherine said it does not mean your daughter has autism just because she has sensory issues.
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Old 08-06-2007, 05:35 AM   #908
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My DS cried and tantrum everyday the 1st couple weeks of K (he was in the same PreK for 2 1/2 yrs--Dec baby). On the 1st day of school, I had to literally leave him in the class rolling on the floor kicking and screaming! I went and got the Speech Path who he knows and she helped calm him down. We had an aide come in for the 1st 1/2 hour every morning for his transition. Finally, after we had open house, he settled in and no more tantrums. I wish I would have put him in the co-teach class from the beginning. (they kept assuring me he'd be OK mainstreamed)
Isn't it funny how everyone else thinks they know your child best-you would think they would have learned by now that you are the best judge of that!
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Old 08-06-2007, 05:40 AM   #909
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This discussion is helping me feel better about the decision to put DS in a self contained class for the beginning of K. He will mainstream out as much as possible when he is ready, but I just feel strongly that he will get the best education by being self contained in a class of 8 or less to start. It's already going to be a HUGE adjustment for him because he's been with the same teachers for 2 years in preK. The class he will be in for K has all ages.
When we moved to Toronto from British Columbia we had our son put in a self contained class (at first we resisted) and it has made such a huge difference! He is now 13 and can finally add/subtract large numbers, multiply and so many other things that he could not do while mainstreamed. I believe it has everything to do with the teacher. The other teachers didn't have special needs training on how to teach them and so he was sort of falling through the cracks even though he had a full time aide.
It is great that they will mainstream him in the subjects that he can handle-that is what they do here as well. It definietly gives them more confidence and gives them a chance to work their way into the system and get used to all the activity around them.
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Old 08-06-2007, 08:57 PM   #910
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Thank you soooo much to abmurray for directing me to this thread. I have 2 son's with Asperger's and one of them has ADD along with it. Most days we do pretty well, and then there are others. My boys are 24 and 16. They have brothers that are 22 and 14. Yes I am out-numbered. But I am grateful for the love and yes the trials that they bring to our home. My oldest was not dx until he was 12. We moved to Cedar City when my DH started a new job. Up until that time the doctor in our small town told me that he had ADD and I just needed to let the meds work. I finally took matters into my own hands and threw the meds away as they were making the situation worse. A couple of years after moving here, I helped with the P.R. work for a new support group for family and educators of autistic children in town. We also started the Southern Utah Autism conference when my oldest was 16. I have since lost contact with the support group. I felt like I was still on my own trying to figure things out. I love the other parents, but they were all dealing with potty training and language . I was dealing with does my son get a driver's license? what about after high school? Where do we go from here? We have figured some things out, but there is still lots to do. And now we are there with the next one, besides making sure that the other 2 get the attention that they need. So we keep busy, just like all of you. SPS has been a lifesaver for me. My friend that is a SU demonstrater sent me this direction, and now I have found this thread. This is where I go to wind down late at night and see all of the beautiful work you have created. I then get inspired to do my own and take care of me for just a minute. Any way, thanks for the space and good luck with your wonderful angel children. If I can help at all, I will certainly share what has helped us.
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Old 08-09-2007, 11:18 AM   #911
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Hi Cassie,

I lurk in here from time to time. I used to work with In-Home behavior programs with kids with Autism and Related Disorders. I wanted to inform you that you would fall under related disorders, and looking for organizations that work with Kids with Autism would be an excellent resource for you. I worked with kids with a few other similar integration disorders and helped to create programs for them. Since she is under 3, depending on your area, you should be able to find a birth-3 or Infant/toddler intervention program that would be able to help your daughter. An OT would definetly be at the top of the list for treatment, but also consider Speech and behavior therapy as well. There are programs that are designed for sensory integration in both of those fields.

Most states have an Autism society which is a good place to look for some referals. Also contact the Department of Social services, (or whatever it may be called in your area) and request some respite care to relieve some of your stress. It is important to take care of yourself to.

Good luck and God Bless all of you on this thread
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Old 08-09-2007, 07:31 PM   #912
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Just read my last post, sounds rather boastful. Sorry about that. I am just forging ahead, making lots of mistakes, but going forward none the less. Some days it rather feels like trying to hike through a swamp without a map. If any one else has adult autistic children, I could sure use some help.
Thanks again.
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Old 08-10-2007, 12:55 AM   #913
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Hi condawg,
I have a son who is 22 y/o and has Asperger's. He was diagnosed 6 years ago. Previously he had been diagnosed with ADD and our journey sounds similar to yours. I have 4 other adult children, ages 20, 27, 31 and 32 y/o. I volunteer about 20 hours a week at an autism center near our home. I take my son there and the head of the center mentors him. I gain alot from volunteering as well as I learn more about Asperger's and autism and compassion from sharing with other parents who call the center.
I understand your concerns. I have them as well with my son. My son is seeing a DAN doctor and he is doing better than he ever has. He is not ready to drive - he does not handle stress well. He also hasn't done well working or attending a local technical school. He started online school last year and is doing great while working on a Bachelor's degree.
But I have had to "mother" him as if he is 9 or 10 y/o instead of his 22 years of age. I have also had to learn to not get angry with him when he acts 9 or 10 y/o and just get him back on track - not always easy, but getting easier. LOL.
Good luck with your son.
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Old 08-10-2007, 04:26 AM   #914
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Just read my last post, sounds rather boastful. Sorry about that. I am just forging ahead, making lots of mistakes, but going forward none the less. Some days it rather feels like trying to hike through a swamp without a map. If any one else has adult autistic children, I could sure use some help.
Thanks again.
I didn't think so at all! You should be happy to have achieved all that you have! My son is just now a teenager so I would love to have any tips or advice that you have!
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Old 08-11-2007, 07:19 PM   #915
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Hi! I'm new to this group. Chef Mama told me about it and I've spent the past few hours reading through some of these posts. I cannot explain how it feels to read the stories of so many others who are experiencing what I am. Until now, I have felt so alone in this, and it is amazing to hear of the strength that all of you show!
I should back up, I guess. I have a 6 yr old son who was diagnosed with Aspergers and ADHD in March. As I told Chef Mama, I am struggling with knowing what parts of his behavior are AS and what isn't. I struggle in knowing what to hold him accountable for and what he can't control. Any ideas on this??
He is going into 1st grade this fall and I will be trying to get an IEP for him. Last year, the school refused to do one since there were only 9 wks of school left after we got his dx. So wish me luck on that one- I'm finding that it is often necessary to go to battle for our kids to make sure thay get the services that they need!
Thanks again for your strength and for sharing your stories, as well as letting me vent!! I'll be watching this forum often.
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Old 08-11-2007, 07:35 PM   #916
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I know how you are feeling. I just found this group this summer, and it's amazing to read all these stories and realize that there are so many that deal with similar issues.
I definitely know what you mean about trying to figure out what to hold him accountable for, and what is just his "quirks". I know I'm not near consistent enough, because sometimes I really get on my DS about a certain behavior (forgetting that it is just HIM) and then other times I figure he just can't control it and am more lenient. It is just SO HARD to know how much to discipline, and SO hard when you get those LOOKS from other people when he's having a meltdown in Walmart because he wants to walk the opposite direction or won't sit in the cart, or is running up and down the aisles.
(Sometimes, I just have to ignore this as long as he is not getting in the way of other people or tearing anything up)

As for school, it is nearly impossible to get an IEP started during the last quarter of school. Teachers are stressed to the max with end of grade testing and annual IEP reviews of those with plans already in place, there simply is NOT time to write a new IEP. Even if there was time to write it, there's really not time to get it implemented the way it needs to be.
What you 100% MUST do, however, is let your concerns known to the teacher on DAY 1. Let her know that you want to set up a meeting as soon as possible to get an IEP started. Give her a week or so and then check back in with her to see if she has had a chance to get a meeting scheduled. Keep in mind that the first couple of weeks of school are insane, and you may need to giver her a gentle reminder.
You SHOULD have a meeting within the first 3 weeks of school. If not, then call the office.
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Old 08-11-2007, 07:39 PM   #917
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The IEP process can be long.... But YOU have rights! The school was very wrong in not putting an IEP together at the end of the school year, as it would have been in the best interest of everyone (the school and your son) to have his plan ready for THIS coming school year.... You have to advocate for you child and learn what your rights are! Depending on your school system, you may be able to go directly to the Special Education Department if you aren't satified with the help you are receiving at the school level. From the first day, you need to speak the teacher AND the principal. Your child has an official diagnosis! Was the testing done through the school or through your medical doctor.... IF it was the medical doctor, the school may want to do their own testing.

As far as what behavior is Aspergers and what is "kid" behavior.... I still struggle with that. My twin boys were diagnosised as ADD in 2nd Grade... in 6th grade they were tested for Aspergers and given that diagnosis. They are now in 10th grade! I feel that they behave better because we DIDN"T have the diagnosis early and we EXPECT them to behave.... Don't flame me, please. My children are very high functioning and their biggest issues are social and speech. I firmly believe most children will rise to the expectations we set for them, for the most part. We do have accomodations for our children. We also have goals for them, and we do set a path to achieve these goals. (and make the appropriate adjustments / accomodations along the way).

Make sure you request your child be put on the IEP schedule ASAP!
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Old 08-11-2007, 08:02 PM   #918
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Thanks for your advice! I will definitely work on getting an IEP as soon as school starts!
Jana- I know what you mean about getting "those looks" in Walmart. I read in a book on AS the other day that said that we just need to remind ourselves that "those who matter don't mind and those who mind don't matter!". I liked that-thought I'd pass it along!
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Old 08-12-2007, 05:31 AM   #919
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The IEP process can be long.... But YOU have rights! The school was very wrong in not putting an IEP together at the end of the school year, as it would have been in the best interest of everyone (the school and your son) to have his plan ready for THIS coming school year.... You have to advocate for you child and learn what your rights are! Depending on your school system, you may be able to go directly to the Special Education Department if you aren't satified with the help you are receiving at the school level. From the first day, you need to speak the teacher AND the principal. Your child has an official diagnosis! Was the testing done through the school or through your medical doctor.... IF it was the medical doctor, the school may want to do their own testing.

Make sure you request your child be put on the IEP schedule ASAP!
Ditto!!! Write a letter to your Dept of Special Education or Special Services of the school board. Tell them about the official diagnosis and ask for the Child Study Team to evaluate him ASAP.

I think your school was wrong to put you off. 9 weeks is a long time and the Child Study Team works through the summer. Please write a letter and make phone calls and get things going before school starts.

And come back here to this forum if you need help.
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Old 08-12-2007, 03:44 PM   #920
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Hi! I'm new to this group. Chef Mama told me about it and I've spent the past few hours reading through some of these posts. I cannot explain how it feels to read the stories of so many others who are experiencing what I am. Until now, I have felt so alone in this, and it is amazing to hear of the strength that all of you show!
I should back up, I guess. I have a 6 yr old son who was diagnosed with Aspergers and ADHD in March. As I told Chef Mama, I am struggling with knowing what parts of his behavior are AS and what isn't. I struggle in knowing what to hold him accountable for and what he can't control. Any ideas on this??
He is going into 1st grade this fall and I will be trying to get an IEP for him. Last year, the school refused to do one since there were only 9 wks of school left after we got his dx. So wish me luck on that one- I'm finding that it is often necessary to go to battle for our kids to make sure thay get the services that they need!
Thanks again for your strength and for sharing your stories, as well as letting me vent!! I'll be watching this forum often.
Hello, and Welcome! My DS #1 is also 6 yo and starting 1st grade (on Wed--Aug 15th). I hadn't even known to let DS's Ped. know about most of his behaviors until I read through this thread--with many tears streaming--this past Spring. Since then we have been on a waiting list for evaluation.

However, as far as the school thing goes, per the Ped's recommendation, I contacted DS's principal at the end of last school year. We talked at length about some of DS's behaviors, strengths and weaknesses so she could be sure to place him with a teacher who will be a good fit for this year (we do know that he is high-functioning, so he is mainstream).

It was the best pro-active move I could ever have made. DS's evaluation is scheduled for Aug 28th and we will do more of the *official* planning with the school after that, but I have again touched base with the principal this past week and had a wonderful hour-long conversation with this year's teacher. I feel we have again been blessed with a teacher who will appreciate DS for all that he truly is (and is not, where the case may be). I can't tell you how much she expressed appreciation that I contacted her before this week got off to its crazy beginning. She is even going to make a point to speak with last year's teacher to find out some of the things that worked for him in Kindergarten.

Best of luck with getting the IEP in place early. But even before that, contact the school. Find out who his teacher is, and discuss with her/him your child's strengths and *triggers.* It will make the start of the school year easier on both.

16 Days and counting 'til our eval!! (Okay, so how many of you felt weird HOPING for confirmation that your child is not *typical*?)
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