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Old 01-02-2008, 04:26 AM   #161
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Originally Posted by goodlicorice View Post

Since it's my older son with SPD and my younger son totally emulates him,
Don't you hate that!?!?!!?

WE have the same situation.
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Old 01-02-2008, 04:34 AM   #162
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We have been at my parents house for 12 days and we are leaving today.

My DS cannot wait to get home. We've come to the realization that he has a 7-9 day limit for a holiday. We are going to WDW in Feb and we are doing a stop at my parents for 3 days enroute. IN total the trip is 9 days. I hope he does okay.

We all got up early this morning for our 5 hour flight home and we were told at the airport that we have a 5 hour delay, so we are back at my parents.

We are now exrtemely sleep deprived, getting sick, DS is desperate to get home and now we have a 5 hour delay before flying 5 hours. Should be a fun flight What's a gal to do? I would have them running around outside to burn energy, but the cold snap that delayed and shut down airports in also the weather that is outside and we cannot play in it. Besides, snow pants are already checked at the airport.

Wish me luck
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Old 01-02-2008, 05:33 AM   #163
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That's me.

My DD is a lot better now and her residual signs from the concussion seem to be gone.

The ped did offer us an OT referral, but since we were persuing something else with DS and we let the referral go since they were the same day. We are still fighting to get back in to see the OT. The other thing we were doing that day was we had him at a specialist's appt on the side of the country because we had been told he had a year to live, but it was a wrong disgnosis complicated by SPD.

Why oh, why does my life have to be complicated?
WHAT!!!! OMGosh!! Talk about rollercoaster of emotions. Geeze... I mean do you get mad b/c of a wrong diagnosis (which obviously would cause great distress on the whole family) or do you just get down on your knees and thank the big man upstairs for it being wrong. Wow...that had to be one completely hard time for you. I'm so sorry. But I'm so very happy the outcome was good.

I'm very happy to see your DD is doing much better now, too.
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Old 01-02-2008, 05:43 AM   #164
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We have been at my parents house for 12 days and we are leaving today.

My DS cannot wait to get home. We've come to the realization that he has a 7-9 day limit for a holiday. We are going to WDW in Feb and we are doing a stop at my parents for 3 days enroute. IN total the trip is 9 days. I hope he does okay.

We all got up early this morning for our 5 hour flight home and we were told at the airport that we have a 5 hour delay, so we are back at my parents.

We are now exrtemely sleep deprived, getting sick, DS is desperate to get home and now we have a 5 hour delay before flying 5 hours. Should be a fun flight What's a gal to do? I would have them running around outside to burn energy, but the cold snap that delayed and shut down airports in also the weather that is outside and we cannot play in it. Besides, snow pants are already checked at the airport.

Wish me luck
I guess suggesting a play area to the airport officials for little ones would be good but a bit late for you right now. But would that be great?!? Like a McD playground or smaller scale? My local mall has a little area where kids can play. They accomidate smokers (no offence to those of you who do), why not our little ones? Video games just don't cut it sometimes. And aren't people suppose to be at the airport a couple of hours before a flight anyway? ...forgive me...thinking outloud here...

Hang in there! Hope the flight home is safe and smooth!
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Old 01-02-2008, 06:40 AM   #165
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Kimberly, what a fantabulous idea!!! Playgrounds in the airports... wow. Genius.

K2, good grief... I am so sorry you are stuck trying to get home. What a nightmare. I haven't had to fly with my SPD kids yet, but i can only imagine what an extra trial it could be. Hope everything works out and you make all your connections!

My parents just got stuck flying home from CA because of the big storm last weekend out here in the Midwest. But thankfully it worked out so that total in three airports they were delayed an etxra four hours all together. They were likewise getting sick and very tired, but at least no kids along!
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Old 01-02-2008, 11:49 AM   #166
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Red face awwww shucks... ;)

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Kimberly, what a fantabulous idea!!! Playgrounds in the airports... wow. Genius.
I can come up with a decent idea about once a year...now what to do the the other 363 days...
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Old 01-02-2008, 05:05 PM   #167
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WHAT!!!! OMGosh!! Talk about rollercoaster of emotions. Geeze... I mean do you get mad b/c of a wrong diagnosis (which obviously would cause great distress on the whole family) or do you just get down on your knees and thank the big man upstairs for it being wrong. Wow...that had to be one completely hard time for you. I'm so sorry. But I'm so very happy the outcome was good.

I'm very happy to see your DD is doing much better now, too.

We cried hard for a week and contemplated pulling him school and doing the cool things he would want to do - space shuttle launch, the beach, etc.

However, we knew within a week the diagnosis was wrong because we took him to Barbados for Christmas and he was perfectly healthy when we were there. We knew it was our house, so we sold it and moved. We lost a lot of money because we were desperate to sell, but we have a healthy child now and that's far more important than the $$ we lost. We have never been angry about the diagnosis, but very grateful with the outcome. We had the attitude that we would rather the doctor make the mistake this way than be afraid to say those words if it had been accurate and not had that year to appreciate our son and spend the time with him, or to potentially find a doctor who could help him. I would be very angry to learn after my child died that the doctor knew and didn't say anything out of fear of being wrong. Does that make sense?
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Old 01-02-2008, 05:14 PM   #168
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I guess suggesting a play area to the airport officials for little ones would be good but a bit late for you right now. But would that be great?!? Like a McD playground or smaller scale? My local mall has a little area where kids can play. They accomidate smokers (no offence to those of you who do), why not our little ones? Video games just don't cut it sometimes. And aren't people suppose to be at the airport a couple of hours before a flight anyway? ...forgive me...thinking outloud here...

Hang in there! Hope the flight home is safe and smooth!
I find that all the play areas are outside of security and since we never know how long security will take, we tend to only have the toddler things to play with that are every gate.

I agree that they should have more for the kids to play with. After all, it's everyone that suffers and not just the kids and the parents.


We were there 2 hours early, but because of the delay, it was 7 hours early. So, we went back to my parents house for a couple hours. But the kids were ready to go, so they didn't really enjoy being back at the house.

When we got everything back on to leave the house the second time, we learned that my parents' car had broken down and had to call a cab.

On the flight DS took 8 trips to the bathroom and one point says `Mom, I forgot to shake and now it hurts' I looked at DH and and told him that this was his department.

We are now home and the kids are in bed.

We have a 3 hour drive tomorrow up to Edmonton for a specialist appt (follow-up from the wrong diagnosis last year, as they continue to sort everything out), and then 3 hours home again.

Then we can relax

Is everyone's kids settling back into routine now? All kids need that routine desperately after the holidays, but SPD kids REALLY need it (and so the parents )

Oh, and Junkie, I haven't found it difficult to travel with our SPD son. He's only slightly more diffficult than our DD when flying (bathroom trips every 30 minutes for him and she can go once on a 5 hour flight). However, my kids fly multiple times a year and have been conditioned since birth. I think they realize that there is no where to go and we cannot pull over, so it's not worth the agony and fighting.
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Old 01-02-2008, 05:29 PM   #169
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We cried hard for a week and contemplated pulling him school and doing the cool things he would want to do - space shuttle launch, the beach, etc.

However, we knew within a week the diagnosis was wrong because we took him to Barbados for Christmas and he was perfectly healthy when we were there. We knew it was our house, so we sold it and moved. We lost a lot of money because we were desperate to sell, but we have a healthy child now and that's far more important than the $$ we lost. We have never been angry about the diagnosis, but very grateful with the outcome. We had the attitude that we would rather the doctor make the mistake this way than be afraid to say those words if it had been accurate and not had that year to appreciate our son and spend the time with him, or to potentially find a doctor who could help him. I would be very angry to learn after my child died that the doctor knew and didn't say anything out of fear of being wrong. Does that make sense?
Abolsutely perfect sense. I couldn't agree with you more. I would rather know than not know and make him as happy and comfortable as possible and do whatever possible for him. To NOT tell me would be just wrong. People react in different ways in situations like this. You obviously have a more down to earth approach then some might have. I'm the same way...

Good luck at your next appointment!

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Old 01-02-2008, 05:44 PM   #170
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I have not flown in an airplane in so long. I think I have flown once since 9-11. Not because of 9-11 mind you. We just like to see the country as we travel from National Park to National Park.

I grew up flying like your kids. My dad worked for the airlines so we traveled every year. And family was miles away. Not once in my travel have I ever seen a place for kids to play. So to hear that there are play areas even outside security is new to me and progress for the airlines.

So glad you made it home safe and sound!
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Old 01-02-2008, 06:07 PM   #171
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I have flown with DS by myself several times, and it's never fun. One time I vividly remember, I was flying back home and I had my younger son in an infant carseat and DS on a safety harness pulling on it like a crazy dog on a chain. he was such a runner as a small little boy, and I know people thought it was cruel, but hey, you do what you gotta do. People kept coming up to me and asking if I needed help and I was exhausted and sad and embarrassed all at the same time.

I have no plans to fly anywhere without DH again.

I was just looking through some old photos of DS as a baby and realizing how his skin was always so red and blotchy. I remember the nurses and doctors looking at us funny during his check ups because he always had red marks all over him from being picked up or held. You can see them on his chest in this picture:
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Old 01-04-2008, 07:06 AM   #172
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Natalie, I know what you mean about funny looks from doctors and nurses! Can't recall if I mentioned it on this thread or not but my daughter had two broken bones by the time she was three. She's also always covered with bruises from constantly straightening her legs forcefully (no matter what is in the way, like a chair or coffee table). I always cringe when we go to the doctor. Last summer it was particularly bad because she had big mosquito welts that she scratched constantly, got infected and scarred. Her shins looked horrible! I was so afraid someone would think they were cigarette burns or something equally awful. LOL-- we don't even smoke.
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Old 01-04-2008, 04:59 PM   #173
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Does anyone else have dentist issues?

I was shocked when I watched Nanny 911 recently when the nanny was apalled while watching the parents sit on their child to brush his teeth. That's what we had to do until he was 4 yo.

We tried to see a dentist when he was 3, but he didn't even make it into the chair. We tried again at 4 yo, but didn't get past the chair again. At 5 yo he made it into the chair, and the mouth was opened, but it closed tight when someone tried to reach inside. At 6 yo we made it through our first cleaning! Yay! Finally!

They got their first look at his teeth at 6 yo, and we were told he had very deep pits, and he needed his teeth sealed. We gave the go-ahead, but the cleaning was as far as they got. At 6 1/2 they managed a cleaning, but found a cavity. They got 1/4 of his mouth sealed at that point, but when they did the filling, the freezing didn't hold through the duration and he felt the last part of the filling. He passed out from the pain I was crying, but he was oblivious to me in his pain. At 7 yo he had another cavity, but there were no problems with the filling. They also got another 1/4 of his mouth sealed. We are still trying to get his first set of X-Rays done and half of his sealants.

Today he started screaming in pain during lunch. I rushed him to the dentist and he had a cavity so bad that they had to pull the tooth. He has another cleaning scheduled for the 14th, and I am hoping she can finish sealing his teeth.

The dentist has told us that he rarely has plaque on his teeth, and obviously we take very good care of them. He has bad teeth, and deep, unprotected pits.

The dentist today was upset because he had to make a judgement call about DS's teeth without X-Rays.

He also recommended that we may want to start seeing a specialist for DS's teeth so that he can get better care from someone who is more experienced with high-needs patients.

I just want to cry right now.
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Old 01-04-2008, 05:24 PM   #174
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You may need to seek a dentist who can out them under to do the dental work.

I know many parents of ASD kiddos go this route because there is no other way they can get them to tolerate cleanings and repairs and such
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Old 01-04-2008, 05:48 PM   #175
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This idea was presented to us, but we were told that the doctors who do this (in our area) are not that child-friendly. So, we have the option of a pediatric clinic with some really great hygenists or a clinic where he is asleep for most of it, but more scared and nervous when he is awake.

To me it's 6 of one, half dozen of the other.

I may request that we do cleanings at the pediatric clinic, but go to the specialist for more complex treatments and x-rays.

I will ask about it next week when I am there for DD's cleaning. I will also ask what they do with ASD kids.

Does anyone else have one kid with SPD and another that is `normal'? The difference is profound at times! For us, the dentist is one of those times.
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Old 01-04-2008, 06:31 PM   #176
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That's me.

My DD is a lot better now and her residual signs from the concussion seem to be gone.

The ped did offer us an OT referral, but since we were persuing something else with DS and we let the referral go since they were the same day. We are still fighting to get back in to see the OT. The other thing we were doing that day was we had him at a specialist's appt on the side of the country because we had been told he had a year to live, but it was a wrong disgnosis complicated by SPD.

Why oh, why does my life have to be complicated?
Hi! I work in OT in NYS & I'm not sure of what state you live in, but doesn't your school system have an OT on staff for your child to be evaluated by? In this state, it is part of a child's IEP if the child has been identified as needing services & it is SUPPOSED to be provided...
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Old 01-04-2008, 07:15 PM   #177
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Hi! I work in OT in NYS & I'm not sure of what state you live in, but doesn't your school system have an OT on staff for your child to be evaluated by? In this state, it is part of a child's IEP if the child has been identified as needing services & it is SUPPOSED to be provided...
she lives in Canada and it is much different than the public school systems in the states
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Old 01-05-2008, 06:43 PM   #178
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I'm pretty lucky that DS has done well at the dentist so far. Last time he did need a filling and was pretty traumatized afterwards .. I haven't gone back with him, they always just take him back by himself, which I actually think works better for him. I think if I was there, he'd cling and cry.

Oh, and I've held both my kids down to brush their teeth at times. That totally stinks.
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Old 01-06-2008, 06:57 AM   #179
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Default Thank you for starting this!!!

I just heard about this thread from my friend, Kim (the My Favorite Things stamp lady). She is one of the only people that know about my son's recently diagnosed SPD. He is 6 and fortunately got accepted into a charter school this year. His teacher recognized and recommended testing for SPD which they do at the school. This was such a blessing after beating my head against the wall for 6 years! I knew my child was different in the hospital when he was born. He NEVER slept. We also had his hearing tested in infancy (and again at 5) because he wasn't turning to our voices and then the smoke alarm went off and he didn't bat an eye, even when he was held a foot away from it. My heart sank but we were told after testing that the mechanics of his ear worked fine. If there was a problem it was in the processing and that would rear it's head when he started to develop language. Well his language exploded at 2 and we thought we dodged a bullet. But there were a number of other difficulties that were apparent and we went from place to place for answers and got the looks and the attitude. I got accused of spoiling, coddling, babying in trying to help my son from everyone from the doctor to my parents to my own husband. So needless to say when this diagnosis came unsolicited from out-of-the-blue, I had a lot of emotions to deal with.

The majority of children with SPD (and there are a lot of them) are gifted. My son is highly intelligent and I think he has learned ways to compensate that have masked his SPD all these years. I can talk more later but I just wanted to say that I am so grateful that someone has started this discussion. Thank you, thank you, thank you. I'll be back.
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Old 01-07-2008, 07:33 AM   #180
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Eat, sleep, what is your name? It's easier than using screen names? If you're uncomfortable with that, what should we call you?

I'm glad you found our thread!

My DS is also gifted and it's his amazing coping mechanisms that get in the way of him getting help. I've heard it called 2e or twice exceptional - people who are gifted and having a learning disability. They are the hardest kids for the schools to handle because the learning diability and the giftedness often mask each other.

I look forward to hearing more about your DS! Is he your only child or do you have other(s) that don't have SPD?

I am Karen, I have 2 kids - 7 yo DS (with SPD) and a 6 yo DD (without). I live in Alberta, Canada. I am a SAHM and my DH is an aerospace engineer. My avatar is my DS.
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Old 01-07-2008, 10:17 AM   #181
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I just heard about this thread from my friend, Kim (the My Favorite Things stamp lady). She is one of the only people that know about my son's recently diagnosed SPD. He is 6 and fortunately got accepted into a charter school this year. His teacher recognized and recommended testing for SPD which they do at the school. This was such a blessing after beating my head against the wall for 6 years! I knew my child was different in the hospital when he was born. He NEVER slept. We also had his hearing tested in infancy (and again at 5) because he wasn't turning to our voices and then the smoke alarm went off and he didn't bat an eye, even when he was held a foot away from it. My heart sank but we were told after testing that the mechanics of his ear worked fine. If there was a problem it was in the processing and that would rear it's head when he started to develop language. Well his language exploded at 2 and we thought we dodged a bullet. But there were a number of other difficulties that were apparent and we went from place to place for answers and got the looks and the attitude. I got accused of spoiling, coddling, babying in trying to help my son from everyone from the doctor to my parents to my own husband. So needless to say when this diagnosis came unsolicited from out-of-the-blue, I had a lot of emotions to deal with.

The majority of children with SPD (and there are a lot of them) are gifted. My son is highly intelligent and I think he has learned ways to compensate that have masked his SPD all these years. I can talk more later but I just wanted to say that I am so grateful that someone has started this discussion. Thank you, thank you, thank you. I'll be back.
Welcome! I'm Natalie, mother of Zachary, 6, with SPD, and Noah, 4, without, although when HE started freaking out about the tags in his clothes and having to wear long pants instead of shorts, believe me, I panicked!
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Old 01-07-2008, 10:20 AM   #182
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I'm so happy school is back in session today!

Zachary's been soooo hyper the past few weeks, and I really think it's from all the extra energy he isn't spending concentrating at school. Normally not one to sleep in, he's been sleeping until 7:00 or 7:30, which for him, IS sleeping in. Very rare for him, but he's been having a hard time falling asleep at night and stayed up later and later these past few weeks. I'm excited to get back on schedule, even if it does mean I have to drive the carpool at 7:30 am!
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Old 01-07-2008, 11:09 AM   #183
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Yes, welcome, Eat/sleep/stamp! I'm Elisabeth and I have a 4 yr old DD with diagnosed SPD and a six yr old DS with undiagnosed SPD.

Is your child a sensory-seeker or a sensory-avoider? I have one of each! Ain't life interesting?

I totally understand your emotional state upon getting a diagnosis--on the one hand you're sad and bewildered and on the other you're like "YES! Finally an explanation." I wish you the very best of luck in informing all those people who thought you were spoiling him, that there really is an issue.

I swear the next person who sticks their nose in it, I am going to step out of my shoes and hand them to them and say, "here you go, walk a mile in these and then come back and I'll gladly listen to your opinion."
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Old 01-08-2008, 07:48 AM   #184
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It just happened again! People who I'm acquainted with but don't know very well always think I have 3 kids, instead of 2 for some reason. \

This morning as I dropped off my younger son at preschool I was talking to one of the other mothers who also goes to my church. I commented how even when she dropped her son off at school, she always looks great, hair done, make up on. (Today I showed up in a sweatshirt, no shower yet, and slippers!) So she replies, "Well, you have more kids than I do."

But I don't - we both have 2! I pointed this out, and she said, "Really? I thought you had 3!"

And I told her, "No, it just feels that way."

People always seem shocked when I point out that I only have 2. And years ago when I just had Zachary, a friend of mine with 5 (or 6?) kids of her own said my one child was equivalent to 3 of hers! She now has 7 or 8 kids.

Interesting, isn't it?
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Old 01-08-2008, 07:58 AM   #185
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My name is Jamie and my only child is my 6 year old son with SPD. We always thought we would have two children, but when my son was so challenging (without explanation), coupled by the fact that we have zero support (no family or friends to help out), we realized that another child would kill us. Besides, we had to spend so much time focused on our son and his issues we couldn't imagine having any time to devote to a second child. We wistfully say every now and then how nice it would have been to have another baby but if CJ is the only one then that is enough for us cause we love him so much. My son often says how much he wants a brother or sister (sigh).

Just yesterday we had the consult with the OT and I said sarcastically when we left, "Well, that was uplifting". She is very nice and I'm sure they will help my son but to sit there for hours and listen to all the "deficits"...well, it's hard. Don't get me wrong, I'm very glad that my son does not have greater issues than SPD but you can't help but feel down sometimes, like it just isn't fair. But I guess that's life. I wouldn't trade my son for anything, I love him just the way he is.

My son just went to the dentist this past year. The first one completely traumatized him. The second one was a Godsend. Now the insurance company tells me he can only see a pediatric dentist until he is 7 (which is Valentine's Day). I made another appointment anyway. I could write pages on the insurance companies, which I believe are the anti-Christ. But I won't go into that now.

Yes, now I will be taking some medicine and going to bed as I have come down with some bug. I'm sure all the stress and working doubles and triples over the holidays have left my resistance very low. I've got some kind of infection but I'm not big on doctors or antibiotics so I'm gonna' try to ride it out. I have a workshop on Sunday for someone I've never met (experienced stampers) so I hope I'm better by then. Thank you again for starting this thread and for the warm welcome. It will be nice to have others to talk with who understand.
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Old 01-08-2008, 08:12 AM   #186
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Obviously, I'm sick. I cannot even post a message!!!

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Old 01-08-2008, 04:11 PM   #187
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Hey, Jamie, hope you're feeling better! I know what it's like to feel like you are on your very last reserves of energy. Try not to stress too much about the event. I'm sure you'll wow them. In any case they;ll just be happy with a night out and stamping.
Things have worsened here and now both my kids are sick. There is a five to seven day stomach bug going around our area and they both have it bad. I got called into school today to pick up my son, whom we thought was finally over it. Guess not!!! Over the past two weeks we have watched just about every video we own... I just hope if I am destined to get it, I do so soon, because I have workshops and clubs from mid- to late-January myself.
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Old 01-09-2008, 11:20 AM   #188
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how's everyone doing? Getting healthier hopefully??

Jamie, I know how you feel about leaving those appointments after being told all the problems. But, the bright side is that you can now deal with the things you know. I know, it's not a great bright side, but it's there.

It's good that you were able to recognize that a 2nd child would be too much for you and then re-evaluate. I know too many people who have a pre-determined number in their head and even when it's obvious to everyone that they should stop, they keep having another 1 or 2. It must be hard though since you do want another.




We realized over the holidays that DS only does his hand-licking at school. Now we have to figure out why he does it at school. The teacher and I are hoping that he simply has dry hands at school because he's handling paper, but we also both think it is probably anxiety. So, then we have to figure out how to help him with his anxiety.

My DD had a dentist appt yesterday and I spoke to the hygenist about switching DS to a ped dentist and she was concerned about that. She feels that he is doing really well where he is (except for not getting x-rays or sealants in) and we shouldn't mess with it. I asked about going to the same dentist office for the cleanings, but go to a specialist dentist for the `other' stuff. She said has a few patients who do that and have had success. He has a cleaning on Monday and she suggested we wait for that appt to see if they can get the remainder of the sealants and a set of x-rays done. Then we decide.
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Old 01-09-2008, 01:03 PM   #189
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My DD had a dentist appt yesterday and I spoke to the hygenist about switching DS to a ped dentist and she was concerned about that. She feels that he is doing really well where he is (except for not getting x-rays or sealants in) and we shouldn't mess with it. I asked about going to the same dentist office for the cleanings, but go to a specialist dentist for the `other' stuff. She said has a few patients who do that and have had success. He has a cleaning on Monday and she suggested we wait for that appt to see if they can get the remainder of the sealants and a set of x-rays done. Then we decide.
Really? Do you think she really thinks that or do you think she's afraid of losing your business? It seems like a pain to me to have 2 different dentists for one child.
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Old 01-09-2008, 02:18 PM   #190
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Really? Do you think she really thinks that or do you think she's afraid of losing your business? It seems like a pain to me to have 2 different dentists for one child.

No. She has an amazing heart. Also, her boss recommended I go elsewhere, so if anything, she is going against her boss to recommend we stay.

I agree that 2 dentists would be a pain.

Hopefully on Monday they can his teeth sealed, and x-rays done
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Old 01-09-2008, 03:46 PM   #191
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No. She has an amazing heart. Also, her boss recommended I go elsewhere, so if anything, she is going against her boss to recommend we stay.

I agree that 2 dentists would be a pain.

Hopefully on Monday they can his teeth sealed, and x-rays done
Good luck! It sounds like you have a fun day ahead of you!
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Old 01-10-2008, 08:17 AM   #192
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No. She has an amazing heart. Also, her boss recommended I go elsewhere, so if anything, she is going against her boss to recommend we stay.

I agree that 2 dentists would be a pain.

Hopefully on Monday they can his teeth sealed, and x-rays done
Good Luck! I hope all goes well!!
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Old 01-10-2008, 09:00 AM   #193
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Well, we've still got the plague at our house... I am completely out of stuff for the kids to do. I'm out of bland foods to feed them, I'm out of groceries, I'm out of patience! I need to go to the store and the bank and the post office. I need out of this smelly sick house!!!! I'm so worried about the kids. I'm just trying to keep them hydrated. But every other day or so they just start over again. Gag.
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Old 01-10-2008, 07:52 PM   #194
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Was searching the web news and came across this article...Autistic Kids: The Sibling Problem

I found this interesting b/c our *typical* kids might be feeling something similar towards their SPD siblings. Just thought I'd share.



Hope everyone gets well soon!
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Old 01-11-2008, 04:20 PM   #195
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Wow! Today was the first time I've ever talked to another SPD mother face to face. I found out an acquaintance of mine has a daughter with SPD and I kept meaning to call her to pick her brain about finding a useful pediatrician in our area. Today she just happened to be at the park, so we compared stories a little. I can't believe I finally know someone else who lives by me and "gets it", you know?!
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Old 01-11-2008, 04:59 PM   #196
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Natalie, that would be awesome to have a friend who is going through the same thing! I hope a real friendship grows for you.
All of my friends are very sympathetic, but sometimes I can read their minds and they're all going, "I'm so glad there's nothing wrong with MY kid." or thei'r glad their kid has a medical issue instead of a "mental" issue. I try not to let it bug me.
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Old 01-11-2008, 05:02 PM   #197
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Well, no one has puked or gone running for the toliet in 36 hours!!! Cross your fingers, I think this might be the end of it! DD had a slight fever today, so we did stay home all day again and we won't be going to the co-worker's wedding we were planning on. But I think we may finally have kicked it, thank God! The kids are back to their normal selves (as normal as we get). I'm actually glad to see their energy levels and eating habits return. LOL remind me of that in a few days when they're bouncing off the walls
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Old 01-14-2008, 05:30 PM   #198
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Was searching the web news and came across this article...Autistic Kids: The Sibling Problem

I found this interesting b/c our *typical* kids might be feeling something similar towards their SPD siblings. Just thought I'd share.



Hope everyone gets well soon!

I am a `sibling' and I agree with this entire article. My younger sister has brain damage from infancy and her troubles mimic a low functioning asperger's and my older brother has epilepsy, ADHD and dyslexia. I have very little relationship with either sibling today because of jealousies that ran very, very deep. I have extremely low self esteem from a lack of attention, but both of my siblings see me as the favorite and the `perfect child', so they don't talk to me.

So, I can agree with what this article stated. The only thing it did not touch on was the feelings of jealousy by the child with difficulty of their `typical' sibling. The anxieties and jealousies go both ways. There is a book about raising `siblings' of those that are not `typical'. I have not read it, as I already know what it's about.

Since I am more aware, I go out of my way to give my kids equal attention (something I never got), and I foster a relationship between them. So far they are best friends, and we will do what we can to continue that. I also don't make her wait while he has appointments. He has his appointments during the day (I spent many, many hours in waiting rooms while my siblings jumped on trampolines, swung on swings, etc) while his sister is at school. If we cannot get DS into something during the day, we make sure both kids have the opportunity after school. I try to make sure that while one of us does homework with one of the kids, the other is spending time with the other.

I don't hold anything against my parents for how I was raised because I don't think they could have done it differently. My Dad worked 2 jobs, and one was shift. My mom worked shift. We never had daycare, so we never had 2 parents at home at the same time as they were always on opposite shift schedules. They got all the necessary therapies for my sister and brother that they needed in order to enter into society as adults. My DH and I have an opportunity to raise our kids differently since he earns enough for me to stay home and we can still afford the extras that DS needs.

Sorry for the diatribe, but obviously, this hits close to home for me.
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Old 01-14-2008, 05:33 PM   #199
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DS's best friend also has SPD, and so do many of the kids in his school. So, every time we are waiting to pick up the kids from school, there are usually at least 2 moms of SPD kids in the group. It's great to be able to pick eachothers' brains for ideas, and for group discounts when ordering sensory items (today we got a great volume discount on pencil grips ).

I will agree that the support is nice, and since this is more prevalent than we think, most of us probably know more people than we realize.
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Old 01-14-2008, 05:50 PM   #200
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Momof2Stampers,

I'm so very sorry...

Thank you for sharing your personal insight and experiences. Its one thing when you read an article (which is typically written by someone who gathers the information rather than from personal experiences), but when you read about someone's life and how it affected them in an intimate way...so very different. Again, thank you.
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