I’d like to make a RAK request for my best friend’s 5 year-old grandson (Liam) and her daughter (Christina - Liam's mom). They have been spending almost every day at the Ronald McDonald House near the St. Louis children's hospital for the last six months because of Liam's kidney disease. He was diagnosed with Focal segmental glomerulosclerosis (FSGS) shortly after his 3rd birthday in February 2005. He turned 5 December 20, 2006.
This is a disorder in the blood-filtering parts of the kidney called the glomeruli. Focal and segmental refer to the pattern of damage to the glomerulus and glomerulosclerosis refers to the damage or scarring (sclerosis) of the glomerulus. Specifically, focal refers to patches within the kidney that are affected and segmental indicates that only a portion of the glomerulus is affected. FSGS damages the glomerulus and allows protein to leak into the urine (proteinuria). Over time, the damage to the kidney may cause kidney failure. FSGS is only one of many causes of kidney failure or end-stage renal disease (ESRD). [Just a short description of the disease]
Liam did have kidney failure and endstage renal disease – which is why he had to have his kidneys removed on May 8th so that they could get the disease out of his body and prepare him for the transplant.
He started hemo-dialysis in February after being on peritoneal dialysis since early December. They had to go to hemo-dialysis because he was having too many complications from the peritoneal dialysis and too many surgeries having to move the catheters around in his body so they would be more effective.
They have done the labs for the transplant process this last week so that if a kidney becomes available and it is a match for him, he will get a new kidney. Unfortunately, the soonest that has ever happened is 5 weeks. But we all know that finding a donor match could take a VERY long time. So there's really no telling how long Liam (and Christina) will have to live in St. Louis - away from most of his family - being poked, prodded and stuck.
Christina and Liam were able to come up to Champaign yesterday for Brenda's wedding rehearsal and will be up for the wedding this coming Saturday. But otherwise, they spend all their time in St. Louis. I saw them yesterday at the rehearsal and thankfully, because of a blood transfusion he’d had a few days earlier, Liam looked and acted like a normal five year-old. He is usually so full of life and just too smart for our
I’d really appreciate your help in making their ordeal a little more pleasant.
Their mailing address is:
Ronald McDonald House
West Pine House
Attn: Liam Connor (Christina Thornton)
4381 West Pine Street
St. Louis, MO 63108
Thank you all so very much for your help and support for my dear friends!! I know I can count on you to help brighten their days just a little bit!!