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Old 03-19-2008, 05:20 AM   #281
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Thanks for the update Mark.

I'll be thinking of Sammie today.
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Old 03-19-2008, 07:37 AM   #282
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I'll be thinking of her today too.
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Old 03-20-2008, 04:56 AM   #283
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Mark, are there any updates? I would love to hear from you!
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Old 03-20-2008, 05:19 AM   #284
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More good vibes for Sammie and Mark - will keep you in my prayers for good news.
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Old 03-20-2008, 05:47 AM   #285
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Many more soft and gentle hugs and positive thoughts for our friends Sammie and her wonderful DH.
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Old 03-20-2008, 12:11 PM   #286
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I think I might call the hospital to see if she is still there. I am not far away. If I get time while at work today, I will let you all know!
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Old 03-22-2008, 10:01 AM   #287
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Stopping by with a warm "hi" and a soft hug. Hoping things are going well and that no news is great news.
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Old 03-22-2008, 11:15 AM   #288
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Just got off the phone, first with Mark, then with Sammie. Mark is home today since he had a bout with pain last evening. Sammie is still in the hospital and has developed pneumonia.

After doing a spinal tap, an MRI and having her examined by an infectious disease doctor, they've (sort of) concluded her latest problems were a result of the combination of chemo drugs and pain meds.

Monday they will do a CT scan and she may possibly be home later this week.

I did ask if there was anything we could all do for her and Sammie said her children have taken care of everything at home but she loves to receive cards.

If anyone would care to send her one and doesn't have her address, please PM myself, Wrose or Muddy Otter. There are others who have her addy too, but I can't remember all of them now. (Y'all should speak up so I don't hurt my brain trying to remember!)

Sammie does sound very weak still and I expect she will until the pneumonia clears. Not so weak she couldn't laugh, though!


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Old 03-22-2008, 11:20 AM   #289
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Thanks for the update, RS. Hope the pneumonia clears soon.
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Old 03-22-2008, 11:29 AM   #290
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Glad to hear you spoke with her RS. Thank you for the update. I'll add her to the list of cards that I need to get out.
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Old 03-22-2008, 12:02 PM   #291
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Thanks Rainsong!
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Old 03-22-2008, 05:21 PM   #292
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I have Sammie's address, too...if anyone would like it.
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Old 03-23-2008, 04:58 AM   #293
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I would like her address. I would love to send her something to hopefully cheer her up. Does anyone know her status? Is she still in the hospital?
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Old 03-23-2008, 05:29 AM   #294
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I would like her address. I would love to send her something to hopefully cheer her up. Does anyone know her status? Is she still in the hospital?
Sammie is still in the hospital (see post #28.

I've sent the address through pm for you.

Thank you so much!

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Old 03-23-2008, 05:34 AM   #295
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Sammie is still in the hospital (see post #28.

I've sent the address through pm for you.

Thank you so much!

Rainsong
Thanks, I'm sorry...I asked this in reply to your PM...hadn't checked this yet. I am going to get something off to her tomorrow.
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Old 03-23-2008, 05:39 AM   #296
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Sammie and Mark,

We're thinking of you both and wishing you a quietly happy Easter filled with strength, warmth and love.
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Old 03-23-2008, 05:40 PM   #297
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Sammie and Mark,
Your entire family is in my thoughts and prayers. Please give us an update when you have time.
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Old 03-24-2008, 01:15 PM   #298
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Update from Sammie!

Hi,
Just a quick note to let you know that I am home from the hospital. They did another CT this morning but said I could go home even I there was a little pneumonia left. I can take oral anti-biotics for that.

Right now I am a little too tired to write much more except that I am done with chemo. Time will tell if the muscle and bone pain and added neuropathy are just temporary, a 1-2 year recovery or permanent. Taxol is a potentially dangerous chemo in some people and it hit me hard and fast. The docs are still shaking their heads about what happened. I can walk again at least. One or two surgeries ahead and then I am done....DONE.

Thanks for the calls, prayers and care.

Love, Sammie
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Old 03-24-2008, 01:25 PM   #299
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I'm so glad you're home now Sammie! Hurray for the end of chemo. Hopefully the pains are only temporary!
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Old 03-24-2008, 01:25 PM   #300
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Thank You Rainsong, I surely appreciate it. Do you know if her family is there with her? I know they live far away and can't always be there.
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Old 03-24-2008, 01:28 PM   #301
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Thank You Rainsong, I surely appreciate it. Do you know if her family is there with her? I know they live far away and can't always be there.
Right now it's just Sammie and Mark. Her kids had to go home for a bit.

She said the girls had filled the fridge and taken care of everything else. Mark takes good care of her so they should be okay.

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Old 03-24-2008, 01:38 PM   #302
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Thanks muchly for the update, Rainsong.
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Old 03-24-2008, 02:06 PM   #303
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Phew, thanks for that RS. Glad she's home and hope this is the point when things start looking up - she certainly deserves a break. They both do.
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Old 03-24-2008, 02:38 PM   #304
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Phew, thanks for that RS. Glad she's home and hope this is the point when things start looking up - she certainly deserves a break. They both do.
Let's hope so. Sammie still has to have the expander removed and the other breast. Wait--I'm not sure she's going to do that though she is leaning toward it.

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Old 03-24-2008, 03:40 PM   #305
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Quote:
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Right now it's just Sammie and Mark. Her kids had to go home for a bit.

She said the girls had filled the fridge and taken care of everything else. Mark takes good care of her so they should be okay.

Rainsong
Rainsong, I am only about 15 min. away from her. If you hear of something she needs, please let me know. I have offered to her, and she hasn't taken me up on it, but if she mentions something, please think of me! Thanks!
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Old 03-25-2008, 11:42 AM   #306
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I have written about the bad side effects I was experiencing from Taxol. Last week, I woke up and couldn’t really walk without falling, talk to Mark about anything that made sense nor could I eat. I fell on my own several times and Mark tried really hard to keep me down. He was scared to death. I then developed a fever of about 102.5. At that point he called oncology and by the time we got there my temp was 103.5. I was put in the hospital until yesterday.

I had such severe leg pain after the Taxol chemo and then the Neulasta shots to hurry up and make more one marrow and build my white count. This alone is very painful and because it is cumulative, the pain got worse each time. This last time was just too much - even for me.

They did a spinal tap in the hospital to rule out mets from the breast cancer to the spinal fluid and to rule out a shingles virus getting into the spinal fluid. Both were negative. I then developed pneumonia in the right lung. 2 out of 3 isn't so bad.

My oncologist said that I had a toxic reaction to the accumulation of Taxol in my system. I made it thru the four A/C chemos and 3 of 4 of the Taxol. He said that I was DONE. Done with chemo. He said one more would be quite dangerous.

I now have to get some strength back before I can even think about getting the expander out – probably in late April or early May. I also have to decide about the other breast. I am strongly leaning to having it removed as I don’t want to keep worrying about more cancer there and I don’t want to go thru more chemo. But then my oncologist said because I was a Triple Neg. that I should be more worried about mets to the major organs. Hmmm……thanks for that worry too.

It was funny in the hospital. When someone came up to take me down to have a CT scan, we were almost out the door when I said “wait. I forgot to comb my hair”. I have no hair. But she asked where my brush was. I just laughed and asked her to look at me again. I'm BALD.

We won’t know if there has been permanent damage for a while as far as my neuropathy and muscle and bone pain. Hope not. But hey – who needs legs anyway. Might as well have them removed too.

Thanks Rainsong for posting the update. My DH doesn’t know that he shouldn’t just post and then never go back. But the poor guy was so tired and had his own pain problems. It was funny when I looked at his post – I asked what a DW was. DUH.

But for right now, my pneumonia is mild now and being treated and I made it thru chemo. Yeah !!!!!!

Thank you again for the support, concern, cards, prayers, well wishes. You have no idea how much that helps.

Hugs.
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Old 03-25-2008, 11:52 AM   #307
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You are truly courageous, Sammie.

Rest well, and keep improving!
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Old 03-25-2008, 01:16 PM   #308
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Thank you so much for taking the time to update us Sammie. We really appreciate it. Keep making progress, one step at a time.
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Old 03-25-2008, 01:24 PM   #309
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Sammie, you must be worn out after your long update. You're supposed to be RESTING!

Still, I'm glad you checked in. Oh, and don't miss Kelly's post right above yours. She sounds like good people.


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Old 03-25-2008, 01:31 PM   #310
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Continued love and hugs to you, Sammie girl.
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Old 03-25-2008, 02:39 PM   #311
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Rainsong, I am only about 15 min. away from her. If you hear of something she needs, please let me know. I have offered to her, and she hasn't taken me up on it, but if she mentions something, please think of me! Thanks!
Thanks so much Kelly. Remember we can do lunch when I am up and getting around again. You have no idea how much your offer of just being there to help means to me. Being just 15 minutes away is comforting. Thanks.
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Old 03-25-2008, 04:14 PM   #312
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Thanks so much Kelly. Remember we can do lunch when I am up and getting around again. You have no idea how much your offer of just being there to help means to me. Being just 15 minutes away is comforting. Thanks.
Sammy, the offer ALWAYS stands! Honestly! Please don't ever, ever, hesitate to contact me, if you need me take you to a Dr. appt, you just need a visitor, you need some food, anything!!!!!!!! Please, my heart would hurt if you didn't ask. I was so close to just come and visiting you at the hospital, but I don't want to intrude. Thanks so much for the update, I am giving you thoughts of strength, both physically and mentally. My family just went through this last year with my Grandfather, so I can empathize. Just remember, I am here if you need ANYTHING!
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Old 03-25-2008, 04:14 PM   #313
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Wow, Sammie, things just keep on challenging you, don't they? Sorry things are so crazy. I love your spirit. Take good care and I will keep sending you postive thoughts.
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Old 03-25-2008, 06:46 PM   #314
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Sammie I am so calmed by your update. I have been checking in with much tension lately and am glad to hear you have reached the end of this treatment journey. Hugs and hopes that your pain recovery moves rapidly. THank you for taking the time to update. I know it takes some energy to do and I know we ALL appreciate your doing it. You are a wonderful person and to hear that you are on the road to health makes me so happy.
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Old 03-26-2008, 05:23 AM   #315
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Sammie and Rainsong,

Many thanks to both of you for the updates.

Sammie,

It's good to hear you sounding better, though the pain sounds unbearable. I'm so sorry the chemo was so rough on you. Just wanted to send gentle ((hugs)) and prayers to you and Mark. I'm sorry to hear that he's had a rough time with pain as well. I think about both of you and keep you in my prayers every day.

I hope things go well with the next surgery and that whatever decision you make, the surgery involves less pain and no complications next time. It's always so good to hear from you. Take care and thank you for letting all of us know what's going on.

Hugs to you my friend, as always,
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Old 03-26-2008, 09:54 AM   #316
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Hugs, Sammie. Thanks for the update. That is funny about DW!
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Old 04-02-2008, 04:10 PM   #317
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Sammie, where's the update? I'm sitting here tapping my toe in anticipation/dread.

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Old 04-02-2008, 06:36 PM   #318
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Got the update:

Hi,
On Tuesday afternoon and Wednesday I was in bad shape. Bone, muscle and knee pain sent me almost through the roof. It was like I had received the Taxol and Neulasta all over again. Incredible pain. I was told that his type side effect could last for a very long time.

I called the pain clinic yesterday but didn't get a call back until today about the knee pain. It started to give me problems before the breast cancer but then when I was diagnosed with BC, they decided to wait until I was through with chemo. I am done and just in time. They are doing an MRI on Monday or Tuesday (I can't remember which) on my left knee - finally.. They gave me a RX for a wheel chair and told me to try and stay off the knee. The knee has given out on me a few times and I can't even begin to describe the pain. The knee swells to about twice the size of the other one. I won't use the wheel chair in the house as I think I just need it when we go out to the store or somewhere where it would be a lot of leg use. Maybe I just need the liquid drained off and steroid shots or something more simple like that as opposed to surgery. I hope so.

I saw the reconstruction surgeon today and I am having surgery on April 16th to remove the expander and put in the implant on the right side. He is going to do a lift of the left breast and thinks that it may be enough to make me look balanced.. He's not sure so he is calling this surgery "part 1". He said he will do more surgery on the left breast as needed if I am smaller on that size to make it look like the implant. But I should end up about the same size as I was before other than I won't "droop". No big boobs. Just "perky" ones. Two weeks. Not much time.

I am going to call Dr. R. tomorrow to have him take a look at the golf ball size sore on my right hip that I still have from when I went into the hospital. It doesn't look good. I was going to ask the DR. today to look at it to see if I should call my PC, but I forgot. I don't like that there is a new white spot by the big scab.

So now I have to be careful not to get near anyone who is sick....AGAIN.

Love,
Sammie
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Old 04-02-2008, 06:42 PM   #319
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hugs sammie.
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2013 Scrapping Goal 48 pages
To date 20 completed!

Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid. - Albert Einstein
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Old 04-02-2008, 07:34 PM   #320
This reminds me of a Star Trek episode....
 
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Join Date: Feb 2004
Location: Aboard the Enterprise, watching NCIS reruns!
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Thanks, Rainsong. More hugs, Sammie.
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