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Old 03-03-2008, 02:27 PM   #241
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Hi Sammie! Glad to hear that the visit was so fun! I hope the scan comes back clear. Hope Mark feels better too!
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Old 03-05-2008, 11:30 AM   #242
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Sammie - your GD's card came today. It is wonderful! My girls love the stickers - thank you & B!!
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Old 03-06-2008, 07:48 PM   #243
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I have SHINGLES too.

I had to go to the oncology clinic today as I have a lot of open sores on my back, side and then ending on my breast. Yesterday there was a discharge from the n*pple. It itched, burned and hurt all day. For some reason my mind went to Mark's side when he had shingles and this looked similar. My sores were bleeding and there are about 20 of them.

Are you ready? I have SHINGLES. Well sh*t. I already take a ton of pills and now there are 6 more a day to take - plus it hurts a lot. I also had to go to the Orthotics clinic today for a fitting for a knee brace for my bad knee.

I am so tired of being tired. I also am tired of going to some DR almost every day. My bones hurt. My joints hurt. My chest hurts. I just hurt everywhere. AND I have to get my next round of chemo on Wed. already. The day before that I have to see my neurologist and my new surgeon. Itís tiring just thinking about it. Plus itís my birthday on Wed. Mark asked what I wanted to do on my birthday. I just said that I would like to be pain free for 2 hours. Just 2 hours and I will be very happy.


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Old 03-06-2008, 07:54 PM   #244
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From what I understand, shingles is not an uncommon side effect of chemotherapy. I have had them a number of times, but not related to chemo. And they are miserable! I'm so sorry you are suffering with even more pain. You have to know, if we could absorb the pain for you, we would.
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Old 03-06-2008, 08:02 PM   #245
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Oh Sammie I am so sorry to hear of this latest turn. My brother had shingles and was obviously in pain so I can empathize. I hope that the medications for the shingles work quickly with no side effects.

And as always thank you for keeping us posted. I always think of you and when you update I "update" my mental wishes for you also.
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Old 03-06-2008, 10:22 PM   #246
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Sammie! I'm so sorry!! Shingles sucks and it is very painful!!
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Old 03-07-2008, 12:47 AM   #247
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Oh Sammie--I am so sorry--shingles s*ck. DS had them all over one of his fingers last year (I never knew you could get them there, too).

gentle {{hugs}} and wishes and prayers for some relief for you--

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Old 03-07-2008, 04:45 AM   #248
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(((Hugs))) to you, Sammie.

I'm sorry to hear you have one more thing piled on top of all the others.
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Old 03-07-2008, 04:50 AM   #249
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so sorry to hear the latest news, Sammie! I have heard that shingles is no fun, never mind everything else you are dealing with! Hang in there and maybe your birthday wish will come true!!!
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Old 03-07-2008, 10:50 AM   #250
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That's just not fair, Sammie
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Old 03-12-2008, 09:04 AM   #251
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Happy birthday Sammie. We are all thinking of you today. I hope it's as pain free as possible.
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Old 03-12-2008, 09:11 AM   #252
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Happy Birthday Sammie!

I also hope it's a happy and pain free day for you, and wish you many, many happy returns!
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Old 03-12-2008, 09:19 AM   #253
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Me three, Sammie!


May it be pain free and full of chocolate!

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Old 03-12-2008, 11:45 AM   #254
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Happy Birthday Sammie!!
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Old 03-12-2008, 11:57 AM   #255
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Happy Birthday Sammie - I'm so sorry to read about the shingles - I've never had them but my mil said it was extremely painful when she had them...
So unfair

I hope you get your birthday wish x 100
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Old 03-12-2008, 12:31 PM   #256
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Happy Birthday Sammie!

I hope you are feeling better, and getting to celebrate a little bit.

{{{hugs}}}

Sharon
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Old 03-12-2008, 04:41 PM   #257
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Happy birthday, SAMMIE!
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Old 03-12-2008, 04:43 PM   #258
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happy birthday sammie!
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Old 03-12-2008, 09:32 PM   #259
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I'm so sorry, Sammie, that just sucks! Hang in there!

*Hugs*

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Old 03-12-2008, 10:18 PM   #260
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Happy Birthday!!! Well, it's still your birthday on the West Coast!

((hugs))
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Old 03-13-2008, 09:01 AM   #261
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First of all, thank you to all who sent me a birthday card. I definitely feel a year older today. I donít like to feel 59 instead of my youth at 58.

I am still in a quandary right now about what to do in late April or early May. I have Triple Neg. breast cancer (BC) and that was not explained tome by the surgeon. I didn't know how dangerous it is or how it metastases to the major organs much faster than if I have one positive in the 3 pathology testing. The chance of getting it in the other breast is 30-40% now as well as sending mets' to the brain, live, lungs and bones. So I think I should have had a bilateral mastectomy to begin with just to be able to stop thinking about this and obsessing over it. I donít think I can go through another round of chemo like I am doing now. But then I guess one does what they have to do when the time comes.

When I first met my surgeon before I had anything done and was only a few days into being diagnosed, he said he would do a bilateral, but he just didn't tell my why I should have had it done. If I had just known what my 3 negatives really meant, there is no doubt in my mind what I would have done then. It is driving me nuts. I had a right to know what my negatives meant, why he said he would do the bilateral and also he said my original cancer was really small when in fact it was really large. I know that the latter is not his fault but that alone is upsetting to me. I didnít have enough time before surgery and no time to research anything as I was still in a whirlwind. I did have the pathology in my hands but I didnít put it together as I am not knowledgeable enough in that area.

I fired my original surgeon for lying or maybe a nicer term would ne that he avoided the truth about several things about what happened to me following my surgery (like why I was in recovery for 9 hours) and a few other things. He is a nice, young surgeon, but I canít trust him.

I met my new surgeon yesterday. She is about 40 y/o I was very direct and I felt very honest. She said that she would do the mastectomy at any time, but to just think about it some more. Yes, I may very well get cancer in the other breast, but it would be a different kind that was in the first. I guess that is the way it always happens with triple neg. BC. The chemo would be different and the cancer would hopefully be caught a lot earlier Ė hopefully. She said that if it comes back in the bones, there is a greater chance for a much loner survival than in the other organs. Obviously any of these would change my BC to a stage IV. Not good. I have a friend who has stage IV BC who has it in her bones and has been that way for 3 years now and is doing OK. But she also started out with cancer in one breast and then it came back in the other breast about a year later. This happened to 3 of my friends and this may be part of why I want the bilateral now.

My oncologist said I should be worried more about other major organs than I should about getting a different cancer in the other breast. That made me more scared because he said because I have Triple Negative BC, it can spread more easily to the major organs.

I see my reconstruction surgeon April 2nd to set a surgical time to take out the expander in the right side and put in the implant in. All agree that because I am already having surgery it would be the best time to do the other breast removal to save another surgery. That is where my head is now. Just do it and get it over with.

I had my 7th chemo yesterday. Only one more to go. Yeah !!!!! So the pain for the next week will be bad but that is how it goes.
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Old 03-13-2008, 09:27 AM   #262
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Sammie, I don't really know what to say to make you feel better, but know that I've been thinking about you and hoping for a ray of sunshine for you and Mark.

(((Hugs)))
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Old 03-13-2008, 09:49 AM   #263
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oh, sammie.

words don't begin to explain how i feel for you.

and hugs just aren't enough.
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Old 03-13-2008, 10:43 AM   #264
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Sammie, I've been posting pictures I received in email and there is one to express exactly how I feel right now.

(I hope it makes you smile.)

Many hugs from Rainsong
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Old 03-13-2008, 12:07 PM   #265
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Sammy, I think of you every single day! Thanks for giving us an update! Tough situation. It is not easy making these decisions, that's for sure. I guess if it were me, I would have it done. I know this surgery was very hard and painful on you, so it's definitely not something to look forward to. But, I know you are strong, and you will get through it. We are all here for you, please keep us updated!
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Old 03-13-2008, 12:47 PM   #266
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Sammie,

I just discovered this thread. I am so sorry for all you are going through, but you are facing it with such dignity and courage. You are in my thoughts and I wish you the very best of everything.

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Old 03-13-2008, 02:35 PM   #267
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Sammie! I am SO GLAD that you got a new surgeon!!!! ...and glad that you are almost done with chemo!
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Old 03-13-2008, 07:14 PM   #268
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Quote:
Originally Posted by Rainsong View Post
Sammie, I've been posting pictures I received in email and there is one to express exactly how I feel right now.

(I hope it makes you smile.)

Many hugs from Rainsong
Thanks my friend, You made me laugh and cry. I love the puppy. That is how I feel right now.
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Old 03-13-2008, 08:01 PM   #269
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Sammie, google Triple Negative Breast Cancer Foundation. It looks like a good site with lots of information. Still thinking good thoughts for you and keeping you in my prayers.

Julie
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Old 03-14-2008, 08:55 AM   #270
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Quote:
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Sammie, google Triple Negative Breast Cancer Foundation. It looks like a good site with lots of information. Still thinking good thoughts for you and keeping you in my prayers.

Julie
Thanks Julie. I started to read from their site a few weeks ago. Very interesting. I am also getting some good info from the Susan G. Komen forum too. Sometimes I feel so bad for many as there are a lot of women in worse shape than I am in. I feel selfish for being self centered and that is probably a good thing for me because it does give me hope in a lot of ways when I really think about it.
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Old 03-15-2008, 05:10 AM   #271
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just stoppin' by to say hi Sammie, sorry I missed your birthday, hoping you are feeling decent today and can enjoy something each and every day. When you are feeling hopeless, just post - we will come to your rescue! Thinking healing thoughts for you.
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Old 03-18-2008, 07:58 PM   #272
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Just a quick update on Sammie (my DW)

She woke up this morning very weak, could only concentrate for about 1 min, had trouble with balance, had trouble walking, started to run a 102+ fever and in a lot of pain. We called the oncologist and he wanted us to come in. He saw her for a few minutes and arranged to have her admitted to the hospital (Meriter Hospital Madison, WI). Tonight they are doing tests and tomorrow they will do a brain MRI. Hopefully they will be able to get the pain under control and find out what has caused all this. She or I will update you all when we have more info. Sammie and I appreciate all the good thoughts and wishes.

Thank you, Mark(DH)
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Old 03-18-2008, 08:02 PM   #273
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Mark, I am so sorry to hear this. Sending good thoughts...

Thanks for updating us.
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Old 03-18-2008, 08:03 PM   #274
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Mark thank you for the update. SOmething must have buzzed in my ear because I just thought to check in here. Bug hugs to you all and warm thoughts coming your way.
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Old 03-18-2008, 08:21 PM   #275
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Sending more positive thoughts. And thanks so much for the update.
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Old 03-18-2008, 08:36 PM   #276
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Mark,

Please tell Sammie we're all thinking about her.

Damn, I always lose my "voice" when I read of more woes for Sammie. I just want to hold her in my arms and tell her everything will be fine. Since I can't do that, I'm going off to make some good vibes for her and light a candle to hold back the dark.

Sending you and Sammie hugs.

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Old 03-18-2008, 11:34 PM   #277
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Thanks for the update, Mark. So sorry that it involves yet more pain for Sammie.
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Old 03-19-2008, 03:53 AM   #278
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Mark,

thank you so much for updating all of us. This just completely bites. I wish we could hug both of you, fix you a nice dinner, tuck you in and make it all go away.

Please know how very, very much we're thinking Sammie and of you too, and sending you our warmest thoughts, prayers, and deepest good wishes.
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Old 03-19-2008, 04:50 AM   #279
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I'm at a loss for words, so I will just echo the sentiments of my more well-spoken friends above. Sammie ia a wonderful soul, and I hope she is relieved of her pain as fast as possible.

I'm thinking of your whole family.
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Old 03-19-2008, 05:17 AM   #280
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Hope she gets some relief and you get some answers soon~
Will be thinking of her today~~
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Fight for your opinions, but do not believe that they contain the whole truth or the only truth. -Charles Anderson Dana
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