Originally Posted by lylacfey
Thank you Jah & Lindsay. Hugs to you. I am trying to keep my DS independent through this and positive. That is very hard because none of this right now feels positive. We always knew this day could happen but he got better and the doctors were even surprised. I am going to make a big day for him just to wallow in. I used to do that when he was little and he liked it. He does know how to read Braille, thank gosh. He's a voracious reader and losing his eyesight and not being able to read would kill him. He just got transferred to a different medical school so he could pursue the medical area he wanted to go into. He's absolutely devastated because he worked so hard and he keeps hanging on to me, literally. I am like "Dude you are a big guy, knock it off!"
Thank you to everyone who sent PM's too.
Oh DeeAnn I'm so sorry to hear this. I think your plan sounds excellent. I'm glad he has transferred to a school that is able to help. My son is on a university campus that shares its site with a deaf school (10% of the enrollment) and it really brings home different abilities (I refuse to use "dis"). My DS is learning ASL because of this, which he never would have done. I know it is early days for your DS but he just has to remember he will have a unique perspective that other doctors won't. He is uniquely special - though I'm positive that right now it quite frankly sucks for him and your family. Keeping you in my thoughts during this time. And if it helps, I believe Stephen Hawking (Motor Neuron Disease) was in university when he was first diagnosed and just look at what he has achieved!
(PS just read Lindsay's post re Stephen Hawking! LOL! - but she is right!)
FWIW I used to work in Oxford, England in the hospitals. The best doctors that came through were the ones that had a struggle - they had a perspective that none of their peers seemed to have.