11-01-2012, 06:44 PM
Join Date: Jan 2008
Location: Reisterstown, Maryland
Update on sweet Austin
Halloween - 2012
My apology for not posting any updates on Austin's for a while.Everything just went by so fast with works and trying to keep up with Austin education.
Austin is doing well over all. He has a MRI/check up at Children in Dallas in a couple weeks then our follow-up in Philly.
He is doing well in school, I think. He is teaching Mommy so many things about Braille and being visually impaired, etc......Although, Mommy have tried repeatedly to learned and has done tons of researches into Braille, being a parent of a visually impaired child, etc....!
There is no such thing but being thrown at it. The only thing I can say that is that would described our experiences is in one short sentence. It is like the ad from Nike...."JUST DO IT!"
So far we learned alot of information from our “friends” and believe it or not our “CHILD”.
About a couple weeks ago, much to our surprises. After we emailed Austin pediatric oncologist for help with extra OT at school.
We got a response: This is what he said: Changing the subject -- I have been very impressed with the therapy and services that you have found for Austin. The Child Life Specialist here at Children's, and I have been trying to identify additional sources of vision-impaired therapy and services for our patients with retinoblastoma and optic nerve tumors.
Would you be willing to share your experiences, contacts and ideas for securing vision-impaired therapies and services for children?
Wow....Carlos and I were very flattered by the compliment and we were thinking, hm if only he knows what we went through every day and still do today. Everyday is a new day. As I said above, we just follow the motta…..”"JUST DO IT!"……..Well, we really didn’t say that….to him. We just told him of course we will help in anyway.
Anyway, on another note…………I just had to with an update on Austin with him getting a flu mist for the first time this year after several years of getting the flu shot...!
This photo is him a yesterday after his first flu mist about a month ago. This is the 2nd flu after the flu mist……and he is still running fevers, headaches plus having nausea & vomiting even with Zofran, Motrin and Tylenol alternate every 3 hrs.
The flu mist is supposed to be better than flu the shot. NOT…..!!!
I have a special request for my friend/confidant and guidance -Jessica with Austin education, etc.
Please keep Jessica in your prayers as she is going through some diagnostic testing tomorrow.
Thank you for keeping up with Austin’s journal and God bless.
View Austin's Page: Cole's Pages