MONDAY, DECEMBER 01, 2008 07:32 PM, CST
Sicily and I have had a decent day. She's been comfortable most of the day with her little personal morphine button. They didn't do an epidural with this last surgery as they were concerned about an infection and she seemed to have had a little weird side affect with the last one. The morphine seems to be taking care of things alright with our little high tolerance pain patient!
When Patrick was in we were able to meet with Dr. Martin, pediatric nephrologist. He's the only one in the state of Oklahoma. Nice doctor. He was able to answer a lot of our questions about Sicily's remaining kidney and its function. He said that she should do alright with it until her teenage years when she has more muscle and increased blood flow and that might wear out her kidney if the work becomes too much. That would be the time to start talking and thinking about a transplant. If or when that time might come, the donor has to be at least eighteen years of age. So Elias, who is three and a half years older than Sicily, may still get his wish to give her one of his kidneys some day. Until that possible day, we will work hard to protect her remaining kidney.
Our main goal and prayer request for this week is to get this little girl up and around, eating and drinking, and all the other "normal" functions needed to get thrown out of a hospital.
Looks like we will be moved to a regular room somtime tomorrow. That is always nice, on my part, because in the PICU, we can't use the patients bathroom...I have to trek down the hall, turn three corners and go through double doors to get to the bathroom. Not a fun trip at 2:00 in the morning.
Sicily vitals are doing pretty good over all, but her heart rate continues to be high. That could be pain related and due to the fever she keeps running. But she is getting Tylenol suppositories and her temp is currently down. Her heart rate ranges between 155 to over 160. Too high for a little gal her age. Hope that resolves itself soon. Sicily talked to her daddy and siblings on the phone a bit ago. Everyone misses each other! We'll all be home together soon!